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Cingulate Gyrus Epilepsy Surgery

Sat, 02/16/2013 - 14:43
Background: My 13-year old son was diagnosed with Frontal Lobe Epilepsy in 2007. Although he has frequent breakthroughs, his doctors (4 over over the years) felt he was "well-controlled" with medicine. About five weeks ago his breakthroughs escalated to 1 per hour and he was hospitalized for a routine 48hr EEG. Because of the frequency (and the fact that he had max'd out on Dilantin), his neurologist called in the epileptologist to review his case. After several weeks (and 5 days of EEG, SPECT scans, MRI and PET scans), the doctors are recommending surgery to remove the affected part of his brain. They also told us that seizures stemming from the Cingulate Gyrus are rare. Question: Has anyone in this forum been diagnosed with Cingulate Gyrus seizures? If so, have you undergone the surgery and what was the outcome? We feel confident in the medical team that is now taking care of our son (Pediatric Epilepsy Center at Florida Hospital for Children in Orlando, FL), but the prospect of brain surgery is extremely scary. Over the past five years he has tried 5 different meds (Keppra, Trileptal, Depakote, Dilantin, Topomax), with limited success. We've been told surgery comes with a 70% success rate, but we're more concerned with the 30%. Any information you'd like to share would be very helpful - thanks!

Comments

Hi, We have just started on

Submitted by Anonymous on Sat, 2014-07-19 - 04:33
Hi, We have just started on the path to surgery, my 10 y.o.  son had VEEG and MRI two months ago and the PET scan is next on the agenda.  We have been told that his seizures are coming from the cingulate gyrus also. Fortunately our son is only having seizure  clusters weekly at this stage.  I would be interested to hear your progress.

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