Community Forum

Topic: Products, Resources, Helpful Links

Created By: cyndie23 | 2009-07-09 03:22 | 2 Comments

Our 3 1/2 year old son was just diagnosed.  Not only was that hard to accept, (he has other issues too), but then when I went to get the meds filled (lamictal) I was told the copay after...

Created By: megfrito | 2009-06-30 16:56 | 0 Comments

I am a recent college graduate of the Milwaukee Institute of Art & Design. For my senior project I designed an epilepsy helmet. The product is currently only a concept. I am pursing grants to...

Created By: mommywyatt | 2009-06-29 05:13 | 0 Comments

Does anyone know when the walk is going to be in 2010? Also, if we go to the 2009 walk page and register, will that register us for the 2010 walk an allow us to have a website for fundraising?...

Created By: teener | 2009-06-05 08:09 | 0 Comments

This is not a sales pitch guys, I'm just sharring something new I have tried.

My nephew (he is 6) has had a lot of problems, socially, physically, mentally. He can not talk. He has had...

Created By: unleashed | 2009-05-11 03:31 | 0 Comments

Is there a newsletter regarding Epilepsy/Seizure Disorders that can be mailed to my home.

Any help is appreciated..

   -  Unleashed

Created By: Lovebug | 2009-04-20 13:31 | 8 Comments

I want to have an emergency bracelet made but not the ones I see on the internet.  I found a place in the mall that engraves bracelets and necklaces.  What should I have printed on it?  I don't...

Created By: kljagain | 2009-04-14 12:39 | 0 Comments

April 2009 Newsweek Cover Story: "The Mystery of Epilepsy - Why we must find a cure"

http://www.newsweek.com/id/193586

Created By: Spike. | 2009-04-07 17:28 | 0 Comments

Just by hearing the highlights of this new story this morning on ABC's 'Good Morning America', I decided to keep my TV on in order to watch the full story. And at the moment of this posting...

Created By: megfrito | 2009-02-20 15:18 | 0 Comments

Hello there,

    I have a question or two for those of you who suffer from drop seizures. Do you wear a helmet or not? If so, what is the worst part and the best part about the helmet?...

Created By: aprilshowers | 2009-01-24 20:42 | 4 Comments

Hi,

My 3 yr old son was diagnosed with epilepsy last week. His seizures began while he was sleeping. I heard that there is a special pillow for that will help him should he have a...

Created By: aprilshowers | 2009-01-24 20:37 | 0 Comments

Hi,

I am new to this. My 3 year old son was diagnosed with epilepsy last week. I heard there is a special pillow for those who have epilepsy. Can anyone tell me where I can find it, and...

Created By: aprilshowers | 2009-01-24 02:24 | 2 Comments

Hi, I am new to this. I am so glad to have found this website. My son is 3 yrs old. He had his first seizure while sleeping, and he vomited afterwards. I heard that there are some special pillows...

Created By: epihelp | 2009-01-09 22:05 | 1 Comment

Hi everyone.. here are 2 articles about energy drinks and seizures.. we were talking about these in chat tonight..I took the following information from Pub Med Central.

1-...

Created By: spiritfild | 2008-12-20 14:40 | 12 Comments

I run a website, ozville.org (major focus on epilepsy awareness). Recently I've been reading a lot about natural cures, health, nutrition.... and I have a few articles and resources I really want...

Created By: Dhani | 2008-11-07 01:11 | 0 Comments

I have another information about Andrographis which I want to share with you guys.

(Suggested Use for Andrographis: Take 1...

Created By: CDmom | 2008-11-04 23:26 | 1 Comment

Hi,

I have a 2 year old daughter who had her very first seizure in June 08.  She was only 22 months old at that time.  She has "drop seizures".  To summarize, her pediatrician sent us to...

Created By: cdkl5mum | 2008-10-11 06:46 | 1 Comment

 

Two of my children had Infantile Spasms / West Syndrome. They have subsequently been found to have a CDKL5 disorder. This is a newly discovered gene that is not yet widely known about...

Created By: seakats | 2008-10-06 17:21 | 1 Comment

I have been looking for specific jewelry, such as a bracelet, that I could buy to benefit ongoing research for epilepsy.  I don't seem to be able to find anything and I would love to attach my...

Created By: kdredske | 2008-10-02 13:38 | 0 Comments

Making a difference in the lives of epilepsy patients is easy when you use Firstgiving!

What is Firstgiving?
Firstgiving.com allows you to be creative in designing an individual...

Created By: Spike. | 2008-08-21 16:38 | 0 Comments

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The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

 
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