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Topic: Products, Resources, Helpful Links

Created By: Tina Denise Blomsterberg | 2009-10-27 13:40 | 333 Views | 1 Comment

My 18 year old daughter has had seizures since having a large cycst removed from her brain. Most occur when she is sleeping. Consequently, there are times when she is afraid to sleep - even...

Created By: Childrens Hospital Boston | 2009-10-27 13:30 | 542 Views | 0 Comments

Hello, The Children's Hospital Boston is posting a multi-part series of epilepsy-related articles on its pediatric health blog, Thrive - http://...

Created By: olddamroad | 2009-10-01 09:24 | 575 Views | 2 Comments

Hello all.  I am new, but not to internet support groups.  They have been my consolation when no one I know is in my boat!

 what's new w/us is that my husband, 65, fell and hit his head...

Created By: mattychem | 2009-09-18 21:15 | 278 Views | 0 Comments

We have reason to believe seizures can be predicted prior to onset using a non-invasive technology, but it has been extremely difficult to find volunteers to assist with sample collection. ...

Created By: phylisfjohnson | 2009-09-01 11:01 | 350 Views | 0 Comments

I was recently introduced to an organization called Canine Partners for Life....

Created By: joyjohn | 2009-08-10 07:17 | 315 Views | 0 Comments

A Place where you can get all side effects and various drugs that interact with any of the epilepsy medication is at International Drug Mart http://...

Created By: loristewart | 2009-08-01 21:44 | 396 Views | 0 Comments

www.seizurestraighttalk.com is a grassroots effort to share information that my husband and I have gathered...

Created By: streetglide821 | 2009-07-21 11:42 | 402 Views | 2 Comments

 

I am currently involved in research that, if successful, would make it possible to predict seizures prior to onset. It is in the preliminary stage and we are at a point where we are...

Created By: cyndie23 | 2009-07-09 03:22 | 433 Views | 2 Comments

Our 3 1/2 year old son was just diagnosed.  Not only was that hard to accept, (he has other issues too), but then when I went to get the meds filled (lamictal) I was told the copay after...

Created By: megfrito | 2009-06-30 16:56 | 698 Views | 0 Comments

I am a recent college graduate of the Milwaukee Institute of Art & Design. For my senior project I designed an epilepsy helmet. The product is currently only a concept. I am pursing grants to...

Created By: mommywyatt | 2009-06-29 05:13 | 264 Views | 0 Comments

Does anyone know when the walk is going to be in 2010? Also, if we go to the 2009 walk page and register, will that register us for the 2010 walk an allow us to have a website for fundraising?...

Created By: teener | 2009-06-05 08:09 | 603 Views | 0 Comments

This is not a sales pitch guys, I'm just sharring something new I have tried.

My nephew (he is 6) has had a lot of problems, socially, physically, mentally. He can not talk. He has had...

Created By: unleashed | 2009-05-11 03:31 | 252 Views | 0 Comments

Is there a newsletter regarding Epilepsy/Seizure Disorders that can be mailed to my home.

Any help is appreciated..

   -  Unleashed

Created By: Lovebug | 2009-04-20 13:31 | 3726 Views | 8 Comments

I want to have an emergency bracelet made but not the ones I see on the internet.  I found a place in the mall that engraves bracelets and necklaces.  What should I have printed on it?  I don't...

Created By: kljagain | 2009-04-14 12:39 | 472 Views | 0 Comments

April 2009 Newsweek Cover Story: "The Mystery of Epilepsy - Why we must find a cure"

http://www.newsweek.com/id/193586

Created By: Spike. | 2009-04-07 17:28 | 282 Views | 0 Comments

Just by hearing the highlights of this new story this morning on ABC's 'Good Morning America', I decided to keep my TV on in order to watch the full story. And at the moment of this posting...

Created By: megfrito | 2009-02-20 15:18 | 398 Views | 0 Comments

Hello there,

    I have a question or two for those of you who suffer from drop seizures. Do you wear a helmet or not? If so, what is the worst part and the best part about the helmet?...

Created By: aprilshowers | 2009-01-24 20:42 | 519 Views | 4 Comments

Hi,

My 3 yr old son was diagnosed with epilepsy last week. His seizures began while he was sleeping. I heard that there is a special pillow for that will help him should he have a...

Created By: aprilshowers | 2009-01-24 20:37 | 237 Views | 0 Comments

Hi,

I am new to this. My 3 year old son was diagnosed with epilepsy last week. I heard there is a special pillow for those who have epilepsy. Can anyone tell me where I can find it, and...

Created By: aprilshowers | 2009-01-24 02:24 | 367 Views | 2 Comments

Hi, I am new to this. I am so glad to have found this website. My son is 3 yrs old. He had his first seizure while sleeping, and he vomited afterwards. I heard that there are some special pillows...

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