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TLE Newbie! *WAVES MADLY*

Mon, 09/04/2006 - 15:35
Hey guys! Stumbled across this site and have been mooching around taking it all in. I love the community forum - everyone seems so friendly. So I thought I would jump on in and say hello. My name is Rachael and I'm from the U.K. I'm 24 years old and I was diagnosed with epilepsy when I was 15, although as we know now, I had been having Simple Partial Seizures since I was about four years old. My mother took me to the doctor numerous times, and was simply told I was attention seeking! As with many of you, I was first diagnosed when I had my first TCS. Since then, I have had maybe 6 or 7 more TCS, frequent SPS, and a fair number of CPS, not all of which lead to TCS, thankfully. I suppose my reason for posting right now, is because lately I've had a lot of stress, very little sleep, and have been very premenstrual, all of which have contributed to a higher instance of SMS than usual. I suppose I should also point out that I am not on medication currently, by choice. The reason for this is that when I was first diagnosed, I was put on Sodium Valproate, which was upped in dose with each TCS until I was on the maximum dose (and taking 12 tablets a day!). The side effects were intolerable to me, and didn't stop the TCS (which back then were the only type I was aware of). However, knowing now what I know, I am wondering if I should go back to my doc and demand to be seen by someone more specialized, and be put on a new medication. The knowledge that there is apparently a link with increased memory loss (mine is bad enough as it is through my seizures) if one doesn't take medication to control SPS and CPS is spurring me on to perhaps do this. All input welcome, and I'm happy to meet you all. :D

Comments

Re: TLE Newbie! *WAVES MADLY*

Submitted by angelsdeath on Mon, 2006-09-04 - 18:24
Hi Rachael, Welcome to the site. I think that maybe you should go back and see someone and maybe be put on a medication that suites you. I think if you get on medication that your seizures might become more controlled. It cant hurt to try it. Whatever you decide to do, Good luck!

Re: Re: TLE Newbie! *WAVES MADLY*

Submitted by Bloodyrose on Mon, 2006-09-04 - 18:35
Thank you. I'm definitely considering it as a serious option. I appreciate your feedback! Thanks! xoxox

Re: TLE Newbie! *WAVES MADLY*

Submitted by Colina on Mon, 2006-09-04 - 18:31
Hi Rachael,Colina waving madly! Welcome to this wonderful community! Valproate was not a good med for me either, but many others were'nt either. It's all trial and error. I'm currently taking Lamictal and Keppra and so far it has been very good. I would recommend that you do find a specialist, they know our condition best. Epilotologist vs nuerologist? My neuro sent me to the epi admitting that seizure disorders were not his most knowledgable area. Best thing that ever happened for me. Hope things go well for you. Nice to meet you! Smiles!

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