New here, my story

Hi everyone. I have been looking around for an online discussion forum for epilepsy patients, this seemed to be the most official-looking one I could find. I was diagnosed last August with what has officially been called Juvenile Myoclonic Epilepsy...which is unusual, because I was 32 years old at the time (I've since turned 33). Normally the age of onset for JME is through the teens or, at the very latest, the late 20s. I never had a clue that anything was wrong with me until after this all started happening...but in retrospect there were symptoms about a year and a half to two years ago that we just didn't recognize except in hindsight. I started having twitches in my hands and feet, isolated jerks which were pronounced enough that they would wake my boyfriend up in the middle of the night if we were sleeping...I'd stare at my hand sometimes because it was just so fascinating to watch my fingers moving without making them. I actually called my boyfriend over a couple times and said "Come look at my hand, it's doing it again" and we would joke about "Wouldn't it be weird if it turned out I had epilepsy or something" (no joke, we seriously said that...I had no clue, I was a healthy 30 year old who'd never been sick). Fast forward to last spring, March 2015, almost a year ago today - I was sitting in my boyfriend's parents' house, it was about 8 o'clock at night, everyone was upstairs and I was downstairs watching TV in the living room. The next thing I remember, I'm lying on the kitchen floor, facing the cabinets, and my boyfriend and his mom are crouched next to me asking me if I'm okay and what happened? I was TERRIFIED. I had NO idea what had just happened and so I was scared out of my mind that something was really wrong with me. No one had seen anything because everyone was upstairs - my boyfriend said he only came downstairs because he "thought he heard a thump or something" which was probably me falling over on the floor, so he came down to see what it was. While no one witnessed what actually happened, we are 99% sure based on the circumstances and my symptoms that this was my first tonic-clonic seizure. We ended up taking me to the ER, where they checked me out for cardiac and brain issues. Of course when they asked me about epilepsy I said "no, of course not." So they pumped me full of saline and sent me on my way. We chalked it up to low blood sugar. A few months later, in mid-July, I was at my parents' house helping them fix up their kitchen...once again I was by myself. Both of them were out of the house. I was standing on top of the kitchen counter, about five feet off the ground, installing a new cabinet shelf. When I came to, I woke up in the next room (I must have crawled?), on the living room floor, COVERED in blood. There was blood all over the place. I felt my face, it felt like I'd been in a car accident. I have never been so scared and disoriented in all my life. I was in pain, I didn't know what had happened, I pieced together that I had fallen and I crawled over to the mirror and opened my mouth. My two front teeth were chipped. My left eye was swollen shut. I had two huge gashes which would later take 13 stitches to close. For some background context, I'm a freelance model, so to say this was devastating is an understatement. I managed to get to the phone and call my parents. The only thing I could say was "I fell" because literally that was the only thing I knew at that point. Once again, I went to the ER, but once again, since no one had witnessed the event, we chalked it up to something else - I assumed I had hit my head hard enough to knock myself out. I was sent home with sutures and ice packs and slowly started to heal...and no one seemed the wiser. Until finally, a week later, I was sitting eating dinner with my parents - this time in a crowded restaurant - and in front of EVERYONE, dropped to the ground and had a full blown tonic-clonic seizure. Now finally everything made sense. At that point I was admitted to the hospital and kept for observation in what would be a month-long parade of neurologists and medical units. I proceeded to have several more seizures throughout the summer, about one a week, and spent another few days in the hospital until they finally stabilized me on a combo of Lamictal, Topamax and Zoloft which has been working well for the past several months. They were never able to explain why my type of epilepsy came on so late in life...it is genetic, so there is no particular cause. Right now my tonic-clonics are under control, but the myoclonus is extremely disruptive especially to my sleep schedule. It has been particularly severe lately (it seems to come and go, though it never completely disappears) and because tiredness exacerbates it, it is worst when I am trying to sleep. I read somewhere recently that Lamictal may actually make myoclonic seizures worse, which would be a shame because it's been such a great drug so far. I am scheduled for a sleep deprivation EEG sometime this spring, though I'm not sure what that will tell the, other than what we already know. Anyway, sorry for this incredibly longwinded into. It's nice to meet you all!