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new to epilepsy.com i need some help. whats worng
Sun, 09/17/2006 - 11:32Topic: New to Epilepsy.com
hi im casey im a 14yr old highschool student and i have abslotly no clue how to deal with epilepsy please help me. i need all the help i can get. what do i need 2 know? what Cant i eat? help me deal with this i need 2 know.
Thank you,
Casey
Comments
Hi Kelly, re: "There is a
Submitted by solis on Sun, 2006-09-17 - 15:31
Hi Kelly,
re: "There is a 95% to a 100% full recovery rate with no more seizures in view."
As one who had surgery, 8 months ago, I'm perplexed as to where you got that bizarre statistic.
If you are referring to taking drugs: the rate is 75% that are (completely) controlled via meds.
If you are referring to surgery; then the rate is about the same % of people: http://professionals.epilepsy.com/page/surgery_outlook.html says the outlook is 70-80% re a temporal lobectomy http://professionals.epilepsy.com/page/surgery_hemis.html
says "'about' 85% to 90% of patients undergoing hemispherectomy experience arrest of their seizure"
http://professionals.epilepsy.com/page/surgery_corpus.html states a corpus callostomy operation would have NO effect on partial seizures.
Either way, your 95%-100% statistic is wrong.
Not even neurosurgery is guaranteed to that degree.
I do NOT mean to burst your bubble (of hope); but, it's important that you go into the surgery with a realistic understanding.
Know I wish you success via the operation
~sol
Hi Casey, I had seizures
Submitted by solis on Sun, 2006-09-17 - 15:49
Hi Casey,
I had seizures when I was 14, so I can appreciate the impact. However; since I grew up with them, and never was controlled, I'm sure that you are far more devastated as you're experiencing a personal loss I never realized until far later in my life.
What type of seizures do you have? What type of meds are you on?
To get immediate help, I suggest you go to www.epilepsy.com and read as much as possible. (The site is run by physicians, so the information there is accurate)
Most here either have epilepsy, or have a loved one with E, so you are in a great site for friendship and understanding.
In the evenings there is generally a chat, so feel free to drop in and introduce yourself.
I was one of the minority of people with E that never got controlled via meds = why my surgery. But, the vast majority with epilepsy become completely controlled on drugs and live normal lives.
So, try to stay positive minded, ok?
take care & wishing you the best,
~sol
Re: new to epilepsy.com i need some help. whats worng
Submitted by Kelly G. on Sun, 2006-09-17 - 15:03
You came to a good place to start. I am 31 and going in for brain surgery in 10 days. My seizures started when I was 20. You can go to my blogs and read my story. Go to the doctors, ask alot of questions, get second opinions, do research online, use this website for support and questions, read all the stories that have something to do with your circumstance, never stop trying. Be careful in everything you do. I come here all the time, my family isn't supportive in many things in my life, yet alone my medical problem. This is a loving, informative place to be. I got the help I needed after 9 years of an idiot doctor putting me on different drugs and telling me I could never be a real person. Now, i'm having brain surgery and being cured (hopefully.) There is a 95% to a 100% full recovery rate with no more seizures in view. I put you on my buddy list if you want to talk. I'm in NY, 31 but the oldest of 6 kids and friendly to all. If you need anything, just ask. I'm sure anyone here will say the same. -Kelly