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New to all of this... no complete answers
Sat, 08/12/2017 - 17:37Topic: New to Epilepsy.com
I'm am 31 and initially my seizures started last October, coming home from a Disneyland trip! Since I have had too many too count! The doctors from Kaiser originally said it was in my head & sent me to a psycho doctor which she then said after weeks of therapy that it wasn't in my head I had lost all feeling in my legs from my knees down for 3-4 weeks and I was in a wheelchair... the seizures were almost every other day at this point. I lost my job and my health ins in January and couldn't get on medi-cal until May they sent me to a neurologist and ran all the tests the doctor says it's epilepsy. I haven't driven since October I had to give up my apartment in November and move my daughter and I home with my parents. They have tried me on 3 different medicines which all knocked me on my ass and I lost anywhere from 24-48 hours. I have read where people have had sudden onset systems from having the swine flu and it was a delayed neurological reaction... which I had in 2009, it nearly killed me from the complications. I've had a total of 3 seizures in one day, I don't sleep unless I'm just so exhausted I knock out or if I've had a seizure, they usually last 5-7 minutes my body jerks while having it and after I've had it when I wake up I don't remember a damn thing and I don't remember where I'm at. My daughter who is 6, helps me get through them by sitting with me and talking to me from what my mom says! Has anyone had close to the same symptoms and/or had issues trying to find out what & why it's happening? Thank you for any feedback!
Welcomethey sent me to a
Submitted by just_joe on Sun, 2017-08-13 - 14:12
Welcomethey sent me to a neurologist and ran all the tests the doctor says it's epilepsy.... Three different medication. But how long were you on them and did the neurologist take you off one while putting you on the next? It takes 3 weeks for the medications to get to the therapeutic levels the neurologists want. If you are taken off one it takes 3 weeks for the therapeutic levels to leave your body. So you had both medications in your body which is why you were knocked on your ass as you put it. I know I have had my medications and dosages changed many times. But by working with my neurologist and asking questions WE Doc and I have gotten my seizures down to ONE seizure every 8-14 days lastinga few seconds. If I have one while talking to people they do not know I had that seizure. Has anyone had close to the same symptoms and/or had issues trying to find out what & why it's happening? Your neurologist did the tests and should have given you the diagnosis and information that came from the tests. The EEG is a brain wave test showing the electrical activity coming from your brain. Just like a EKG/ECG does the heart. The MRI would show anything different with your brain. Different meaning it shows scar tissue, tumors or cell growth that was different. Cell deformatin can cause epilepsy. Scar tissue is what caused my epilepsy. SO the neurologist should know where in your brain the seizures start and if there is anything on your brain that can cause you to have a seizure..What starts a seizure is an electrical impulse hitting wrong in your brain. That wrong hit causes a chain reaction which is the seizure itself.I hope this helps and you get seizure freeJoe