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My story
Wed, 07/26/2006 - 21:21Topic: New to Epilepsy.com
So hello all I decided to come here after a person told me about this site. Well first of let me introduce myself I'm Reanne, 20 yrs old and a recent diagonised of seizure disorder in January, it was after a head blow I recived 3 yrs ago. My first seizure was on Jan 8th I woke up to a room full of paramedics and having no way to understand what was going on. I have been in the hospital many times, I even stoped breathing and had to be intubated. The doctors at first told me it was all in my head that I needed pyschotherapy. I went to the pysch and they told me they were not conviced that it was all in my head. I have a new neuro who has now started me to topomax after the dilantin has stopped working. I was an EMT student but had to quit cause I was getting sick to often. All my family has left me in the dust they refuse to accpt the fact that I have a disorder. I hope everyone is well and will post often.
Re: My story
Submitted by SaraOwens on Wed, 2006-07-26 - 22:37
My goodness! You should be able to catch up to your family eventually, and to continue your studies! I had a bicycling accident in 1993, and in 1995 I had my first grand mal seizure, while I was asleep. When I woke up, I was being led to an ambulance, across the front yard. I had no clue as to what was up, and when someone told me, I didn't even know what a seizure was! Your life is going to change so much, and epilepsy is like a shadow you must accept as your own. Once you accept this shadow, you can start to feel normal again. I was in denial for a long time, ignoring the seizures, and drinking my life away. One day I finally came to realize that the seizures weren't going away, and I had to change my life. I hope that you won't have to go through any denial, and I'm glad that you've come to this site. When my epilepsy first set in, I didn't have a computer, nor did I know how to use one!! I came to this website a few weeks ago, and the people here have inspired me to accept my epilepsy even more, and to use it to any advantage I can!! Epilepsy is something we all share here, no matter how it has been acquired. Thatnk goodness we can support each other through one of the greatest therapies for humans; writing! Good luck to you, Sunshine, and I hope to hear more from you! Sara-