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Life after Epilim

Sun, 08/06/2017 - 17:23
Hi everyone, I'm new to this site. So I am not a new epileptic. I've been epileptic for 17 years. That's over 1/2 of my life. However the thing is, due to a change in medication I am left feeling like a new epileptic. Someone who doesn't know who they are. It's weird. Here's a brief history. I was having myclonic jerks for around 8 months before I was given the diagnoses Juvenile myoclonic. epilepsy. Lovely, was put on epilim and had the seizures under control pretty quickly. I only have 2 or 3 grand mals later on in late teens due to self neglect. Then I changed to Keppra due to pregnancy issues and Epilim. That's when it went all tits up. 3 grand mals 6-8 weeks apart, depression, anxiety, isolation, mood swings, fear of discrimination, overthinking of everything because I didn't want to harm those around me, fear of SUDEP, self-neglect because I was fed up, around 20- 30 myoclonic jerks and absences a day. My life turned upside down. And the worse things about it.... no-one gets it. Hence why I'm here. So now they are changing me to Lamotrogine. And I just hope it works. I've come to the conclusion that I am going to change again. I'm going to probably turn into a new person who I will need to learn to embrace. New personalities, maybe clothes size. I just, needed to get it off my chest. I just needed to talk about it because I think I'm hurting too many ppl around me. It's better to say it to someone who isn't immediately attached to the situation.

Comments

Hello! I have also been an

Submitted by Epilepsy_Warrior on Sun, 2017-08-13 - 03:50
Hello! I have also been an epileptic for 17 years :/ but I'm only 22 so that has been most of my life. I am on lamotrigine too. Is it actually said to have the least side effects and stuff :) and i can vouch for that! Terrible doctors throughout my life have tried putting me on 14 different medications and all of them failed. They put me on lamotrigine and I can say that I have nearly no side effects, except maybe sleepiness but that's like all of us epileptics lol. Although my seizures still aren't completely controlled with just the one medicine (lamoteigine is usually an add-on medication to another). I'm so sorry to hear your story :( At 22 I am forced to live off of SSI and SSDI because no one will hire someone like me.. I sit at home just longing to go out there and use my medical coding degree from college that I worked so hard for, but I can't and it expires next year now. All I'm saying is that we are all in this together okay girl :) and we are all here to listen to each other! I wish you the best and God bless you <3

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