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just need a lace to let it out...
Wed, 10/11/2006 - 18:44Topic: New to Epilepsy.com
had frist grand mal { tonic clonic} what ever they call it now, 3 and ahalf years ago it was in my sleep my wife freaked out. i woke up in the ambulance. second was at work six months later. same thing i know nothing except the ride. and being in alot of pain the next few days every muscle in my body hurt. been on meds since.have simple partical seizure often i am 43 feel very alone, paranoid and lost. i have not even used the E word to describe my condition until the last couple of months { was always in denial.} afraid to talk about how i feel and what i am going threw, cause it feels like i get an "oh no here we go again, kyle and his seizure problems" kind of reaction from everyone, ppl at work wife ect. again i might just be paranoid...i do feel like life has put the screws to me.. i have a 17 year old son with downs syndrome. i am the only income in the house family of 4. feel like crap alot. from meds, E lifes problems or what ever. just needed to vent.
Comments
Re: Re: just need a lace to let it out...
Submitted by kylesbeck on Thu, 2006-10-12 - 16:24
thanks for your reply and thoughts. i know what you are saying, it is just that sometimes...well it gets tuff. i am just starting depakote, and going off lamictal after 3 months on that started having increase in partial's, so we will try another one again.
Vent away kylesback, vent
Submitted by happycat2 on Thu, 2006-10-12 - 20:54
Vent away kylesback, vent away. Nobody will mind, and that's what this place is for. I've found there's always somebody around to offer a listening ear, and reply. Sometimes we all need to vent, and it helps if folks understand were we are coming from when we do. Makes thingsa whole lot easier.
I'm sorry to hear things are as they are right now truly. My own experience, along with reading other folks experiences has been, it's not easy to just get on with it, and balance the chequebook. Not when you have family who rely on you anyway. I've also found over time, increases in partials are the pits when dealing with them on a daily basis. I guess more than a few others have to.
Med changes can be the same, as you have been finding out. When that happens, places like this one can be really handy to have around. Even if just to let off stem, knowing you will be understood. I hope this latest med change brings you relief from those pesky partials, and things get back to normal in your world. Until then, just hang in there, try and stay focused and as upbeat as you can. Keep us updated how things are going.
Cat.
"Many false prophets are gone out into the world." 1 John 4:1
Re: just need a lace to let it out...
Submitted by michelhead on Thu, 2006-10-12 - 13:05
Try not to get discouraged. Of course, I understand how you feel because I've felt the same way over the last few months. While I don't have grand mals, I know how it is to be paranoid about what is going to happen next. I'm only 24, going to be 25 tomorrow and getting married next year. I wonder if things get worse, how that's going to affect my marriage. From what I've seen, people try to be supportive, but they just don't have a basis of understanding what is happening to you. Just remember, at some point in everyone's life they have health problems. Some people get cancer, others get heart disease, and other debilitating diseases. If you feel like your meds are interfering with you daily life, try discussing with your doctor other medicine alternatives. I'm not sure what you are taking now, but Lamictal might be an option as it has been approved for partials and tonic clonics. I have just started it, but it is suppose to be more of a stimulant and help concentration. Thus far, it has definitely helped my alertness and concentration levels especially for work. Good Luck.