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I'm a newbie with a "grand mal wake-up-call"

Sun, 04/16/2006 - 09:03
Hey, folks! What a great website! By way of introduction, I am a 32-yr old female engineer who had no idea about E until March 25, when I had a grand mal seizure in front of about 200 people. I woke up in the back of an ambulance with paramedics scolding me for trying to take the oxygen tube out of my nose (apparently I was a little fiesty--oops!). Anyway, they told me I had just had a seizure, and I said "OK", but then internally, I said "a Seizure?? NOT ok!!" So subsequently I had an MRI (normal) and an EEG (not so normal). Because of the EEG, the Doc put me on Keppra "just to make sure." The doc also had told me before the MRI and EEG that technically it wasn't epilepsy until I'd had 2 seizures. Then he handed me a bunch of literature about epilepsy anyway, so it seemed to be merely a matter of semantics. The wierd thing is, I previously always thought that the only thing that is a seizure is a full-up, grand mal, convulsive affair such as the one I just experienced. It was only after much reading that I learned about simple and complex partials, and now that I know what those are, I can tell ya I've been having seizures for a long time without knowing that's what they are! I just thought it was sleep deprivation and stress. So in a way, the grand mal was a good thing, because it got me to a neurologist and now I'm under treatment. I gotta say, this is all a little scary to me, but I find humor to be my friend through this. My husband and I just have to laugh at such things as my saying "suffering succotash" while my poor, badly bitten tongue heals (what a ridiculous thing to do to oneself, lol!). Anybody else have no idea they were having seizures until a "big one" in adulthood? Just curious. Happy Easter! --Juperee

Comments

Re: I'm a newbie with a "grand mal wake-up-call"

Submitted by Anonymous on Sun, 2006-04-16 - 12:52
Your experiences are very similar to many - not being aware that seizures were occurring until a visible one with motor changes or loss of consciousness happens. Believe it or not, it is usually years from time of seizure onset to time of diagnosis, and even longer (up to 15 years on average before people are seen at comprehensive epilepsy centers. Glad you are being seen and hope all works out well. Welcome aboard to Epilepsy.com. Take a breeze around the site and this forum and you'll meet lots of helpful people. Let us know other questions or concerns you have! Happy Easter and Good luck!! Epilepsy.com Resource Specialist

Re: Re: I'm a newbie with a "grand mal wake-up-call"

Submitted by juperee on Sun, 2006-04-16 - 17:28
Thanks, epi-help. I am certainly still learning. I just found out after talking to my husband, brother, and sister-in-law that it's not really normal to have deja vu about once a week! I was just commenting on what an unhelpful symptom "deja vu" is, since everybody gets it so often, when my husband said something about the last time he had deja vu a few years ago!? I immediately asked them all how often it occured for them, and my husband said every 2-3 years, my bro said 6 times in his life, and my sis-in-law said a few times a year. Heck, sometimes I have it 6 times a DAY, and sometimes for a frustratingly long period of time that leads to confustion. Come to think of it, I have only had deja vu once since starting Keppra. But my point is simply that it's funny how many things we think are "normal" based on our own experience so we never discuss them with others. Lots to figure out yet. --juperee

Re: I'm a newbie with a "grand mal wake-up-call"

Submitted by Leica Jones on Sun, 2006-04-16 - 20:29
Hi Juperee Welcome to the crazy world of Epilepsy!. I am a 43 year old preschool teacher and woke up in the hospital two weeks ago after a whopper of a grand mal. Anyway, I am just getting feeling back in my tongue (chewed it up something terrible) and getting over the anger. I think the hardest thing about having epilepsy is the frustration and the depression after seizure. I notice that you kept your sense of humour (very important) It is also important to have people around you that can understand our unique after seizure gibberish. I just found this web site, so I think it is pretty cool also. Can't for the life of me get into the chat room. Im on Keppra also. How are your side effects? I find that my memory is attrotious (did I spell that right?) I gotta go. I am going to see if I can get into the chat room or if my computer is just bad. By they way I hear the theme from jaws when my seizures are coming. Da da da da da da lol Leica

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