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hello new to my.epilepsy.com

Wed, 09/27/2006 - 12:43
Hi my name is Julie I am 22 and was diagnosed with jme when I was 13. Im new to this site and so far love it.I have never talked about my epilepsy with anyone other than family and a few close friends. Its nice to not feel like I'm the only one with this problem. I started haveing arm jerks when I was 11 but my family thought It was a joke. When I had my first seizure at age 13 everyone realized it was real but no one thought it was a big deal.I went to the my first neuro visit shortly after my first seizure I was told I would grow out of it. Just 4 months ago my new doc told me it would never go away its still hard to believe I dont know witch doc is right.My seazures stopped as a teen for awhile but after my first child they stared again but worse than before. i had a second child 5 months ago and seem to feel funny alot and still have eye flutters and arm jerks .I take 50mg of lamictal twice a day.I'v been on meds for over a year and a half and have not had a seizure since I started taking my meds on a regular basis. I'm in between insurance and unsure if I will be able to stay on my meds it scares me cause I'm not sure what will happen I'm trying really hard to take care of myself and learn more about jme. EPILEPSY IS A BIG DEAL TO ME my husband is the only one who can see what all I deal with from day to day and understand. he is always there for me.

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