Grand mal this morning. PNES?

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I just have to open myself to somebody (anonymous) who can understand, and then I found this forum.
I was half asleep early this morning when I started to feel sick (nauseatic) and very dizzy. I felt like I was going to faint and tried to combat it. Next thing I knew was that my wife held her hand on my shoulder and told me that I had moved a lot and "made noises", but I got the impression that I had just passed out for a couple of seconds and that it wasn't anything very serious. But I felt soooo sick and dizzy and so weak that I couldn't move. After half an hour in a coma I decided to go to the bathroom to have a shower, but realized that I was too dizzy and felt like I had to vomit, so I found a bowl and laid down on a carpet in the living room and tried to vomit. Meanwhile my wife started making up the bed - and could inform me that I had peed the bed (!). It was only then that I realized that my underwear was wet as well. I must have been totally comatose not to notice.
It turns out that I have really soaked the mattress. I have never lost control of my bladder during the few seizures I have had. I guess it must have been a full-blown grand mal / tonic-clonic seizure (isn't that what it is called?) after all.
Some time back, in a relatively short period, I had two serious grand mals (in a row) and several other incidents that were probably seizures (but they were not observed by anybody, so it's hard to tell). The tests that were carried out then (sleep deprived EEG, CT) gave no indications of epileptic activity or other abnormalities. Since those episodes coinceded with very stressful periods and lack of sleep the neurologist's guess was psychogenic non-epolieptic seizures. It's perhaps better than being diagnosed with epilepsy, but as far as I understand it can't really be treated medically. Guess I have to take better care of myself, make sure I get enough sleep and maybe be careful with alcohol (stayed up late and had a few drinks yesterday to celebarate my birthday, in fact - regret that now).

This is my home office day, so I didn't have to call in sick, but I sit here with a very bad headache and feel rather retarded, very drowsy, very confused and ... how shall I describe it ... "unreal".

I am also scared to death that I will have more seizures now that it has started again. Please tell me that seizures don't have to come in a series ...

I

Comments

Generally in all the grand

Submitted by just_joe on Mon, 2014-08-18 - 10:32

Generally in all the grand mal seizures I had I know nothing about what happened in them. You can lose control of your baldder in several types of seizures.. Your doctor should know that all it takes to be a epileptic is 2 seizures. I had many tests and 20-25 different EEG's done. All of them came hack normal. The first EEG that showed abnormalities (seizure activity) was one in which I fell asleep. I would agree with Mereloaded about the different EEG's. They have one which is hooked up at the office and you carry it home with you. I left the office and had it put on me late thrusday afternoon. I wore it all weekend. They wanted me to go back to the office on sat so they could download the info and change the battery. They took it off me on monday. It showed seizure activity when I was asleep. SO that unit can show the neurologist more information. The VEEG is done in a moniterin unit (generally in a hospital) and you are watched or videoed while you are there. I had one of them done because Doc wanted to see if I was a candidate for a new procedure. I had a room and watched movies the food was good. Friends and family members cane by and we visited for hours. I got tired of the bed so I crashed in the recliner. I also pushed the button and talked to the people doing the monitering and let them know when I had a seizure since most of mine are simple partial and last seconds. There are many medications today that help control seizures. There are many people that are now seizure free. There are people like me who still have seizures. But my seizures are seconds long and I can have one while talking on the phone and no one would know anything about the seizure. I have had them at grocery stores and the people in the asile or behind the counter didn't know I had one. Seizures can and do at times come in clusters or as you posted series. I can have a cluster of partial seizures which means back to back seizures. After teh second seizure I take a rescue medication which stops the cluster. I have had to do that about 4 times in a year. The smae medications can be used for grand mal seizures. So relax some. Now understand in a grand mal seizure your muscles are jerking with all their strength and yu have more strength then you think. Also know at all a seizure is is an electrical impulse going off wrong in the brain which causes a chain reaction. Your body is drained of energy so it does take time to get that energy back. At times I it has taken me days to get everything back when I was having convulsive seizures. Even the seizures I had some years ago wore me out and at times I had to go home and crash. I hope you get the assistance yo uneed and please come back and tell us how things are going

Generally in all the grand mal seizures I had I know nothing about what happened in them. You can lose control of your baldder in several types of seizures..  Your doctor should know that all it takes to be a epileptic is 2 seizures. I had many tests and 20-25 different EEG's done. All of them came hack normal. The first EEG that showed abnormalities (seizure activity) was one in which I fell asleep. I would agree with Mereloaded about  the different EEG's. They have one which is hooked up at the office and you carry it home with you. I left the office and had it put on me late thrusday afternoon. I wore it all weekend. They wanted me to go back to the office on sat so they could download the info and change the battery. They took it off me on monday. It showed seizure activity when I was asleep. SO that unit can show the neurologist more information. The VEEG is done in a moniterin unit (generally in a hospital) and you are watched or videoed while you are there. I had one of them done because Doc wanted to see if I was a candidate for a new procedure. I had a room and watched movies the food was good. Friends and family members cane by and we visited for hours. I got tired of the bed so I crashed in the recliner. I also pushed the button and talked to the people doing the monitering and let them know when I had a seizure since most of mine are simple partial and last seconds. There are many medications today that help control seizures. There are many people that are now seizure free. There are people like me who still have seizures. But my seizures are seconds long and I can have one while talking on the phone and no one would know anything about the seizure. I have had them at grocery stores and the people in the asile or behind the counter didn't know I had one. Seizures can and do at times come in clusters or as you posted series. I can have a cluster of partial seizures which means back to back seizures. After teh second seizure I take a rescue medication which stops the cluster. I have had to do that about 4 times in a year. The smae medications can be used for grand mal seizures. So relax some. Now understand in a grand mal seizure your muscles are jerking with all their strength and yu have more strength then you think. Also know at all a seizure is is an electrical impulse going off wrong in the brain which causes a chain reaction. Your body is drained of energy so it does take time to get that energy back. At times I it has taken me days to get everything back when I was having convulsive seizures. Even the seizures I had some years ago wore me out and at times I had to go home and crash. I hope you get the assistance yo uneed and please come back and tell us how things are going

Generally in all the grand mal seizures I had I know nothing about what happened in them. You can lose control of your baldder in several types of seizures.. Your doctor should know that all it takes to be a epileptic is 2 seizures. I had many tests and 20-25 different EEG's done. All of them came hack normal. The first EEG that showed abnormalities (seizure activity) was one in which I fell asleep. I would agree with Mereloaded about the different EEG's. They have one which is hooked up at the office and you carry it home with you. I left the office and had it put on me late thrusday afternoon. I wore it all weekend. They wanted me to go back to the office on sat so they could download the info and change the battery. They took it off me on monday. It showed seizure activity when I was asleep. SO that unit can show the neurologist more information. The VEEG is done in a moniterin unit (generally in a hospital) and you are watched or videoed while you are there. I had one of them done because Doc wanted to see if I was a candidate for a new procedure. I had a room and watched movies the food was good. Friends and family members cane by and we visited for hours. I got tired of the bed so I crashed in the recliner. I also pushed the button and talked to the people doing the monitering and let them know when I had a seizure since most of mine are simple partial and last seconds. There are many medications today that help control seizures. There are many people that are now seizure free. There are people like me who still have seizures. But my seizures are seconds long and I can have one while talking on the phone and no one would know anything about the seizure. I have had them at grocery stores and the people in the asile or behind the counter didn't know I had one. Seizures can and do at times come in clusters or as you posted series. I can have a cluster of partial seizures which means back to back seizures. After teh second seizure I take a rescue medication which stops the cluster. I have had to do that about 4 times in a year. The smae medications can be used for grand mal seizures. So relax some. Now understand in a grand mal seizure your muscles are jerking with all their strength and yu have more strength then you think. Also know at all a seizure is is an electrical impulse going off wrong in the brain which causes a chain reaction. Your body is drained of energy so it does take time to get that energy back. At times I it has taken me days to get everything back when I was having convulsive seizures. Even the seizures I had some years ago wore me out and at times I had to go home and crash. I hope you get the assistance yo uneed and please come back and tell us how things are going

Grand mal this morning. PNES?

Comments

Generally in all the grand

Submitted by just_joe on Mon, 2014-08-18 - 10:32

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