Epileptic Son Screaming In Agony

Wow, seems to happen frequently! Could you ask for an extended EEG or have they failed to catch useful info with prior EEG and similar episode? Do you feel your child's specialists are likely to have a lot of experience with offbeat/challenging cases, have you considered a second opinion? The only information I've seen about status with partial seizures said it was rare (not helpful, imo). However my perspective is from the other direction... known episodes that were probably seizures (extended staring) for which we saw the neurologist who thought it likely the other weird episodes (including abdominal pains that seem to last many/30 minutes, but not hours) were likely partial seizures - we had been eliminatilng gastro issues thinking they were migraines. We went with the seizure medication first as bad smells and tastes were showing up (and some corresponding EEG info). It shortened and mostly eliminated the episodes (think simple moving to complex really could have confused child's reporting of events). So... has your son responded to the any regular aed or migraine medication? Were there other checks by gastroenterology?

ps - our previous history includes a surgeon who was very sure our child had cyclical vomiting syndrome (sometimes actual genius docs don't read your child quite right, or listen fully). I wonder how long it would have taken to figure things out if we were without the surgeon who had better insight (cause people have a hard time disagreeing with a genius, sometimes they stop considering other possibilities).