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Daughter w/ 2 dif types of Seizures
Mon, 12/08/2014 - 17:02Afternoon,
My daughter was diagnosed with absence seizures on Sept. 30th of this year. She will be 3 in april next year. As of now shes had her eeg which showed abnormal brain waves and a mri that came out clean. Her neurologist put her on Keppra started off at 1.5ml but since her seizures hasn't got any better he upped hers to 3ml. Shes about 33lbs and 32 months old as of now. She a typical absence seizures and a tonic seizures (she falls half of the time with her seizures). I'm new all this and still doing research into everything.My daughter is healthy besides having the seizures. I'm hoping she will grow out of them. Has anyone had similar situation and their son/daughter is seizure free now. My daughter is also started taking b6 50 mg 2x daily starting this past saturday to help with her temper (seems to start helping dont know for sure just yet to early to tell).
I'm here just looking for advice and other parents with children that are going through the same thing so i dont feel alone in this.
~Samantha~
I am the one with seizures
Submitted by just_joe on Tue, 2014-12-09 - 10:10
I am the one with seizures not my kids There are many medications out that treat different types of seizures and you will or might have someone questioning why this medication when it is designed to treat another type of seizure. I have been in drug studies and do know that once a medication is out the testing doean't stop there. Medications designed to treat stronger types of seizures are then tested for other types of seizures. After testing for seizures and types of seizures it is then tested to see which medication it can be coupled with. I have epilepsy. The types of seizures I have are different. One of thsoe is focal seizures. One is simple partial. I was diagnosed with petite mal, grande mal and focal motor epilepsy. Petite mal is nothing more then absence epilepsy. Grand mal seizures are tonic clonic seizures. Focal motor and focal seizures. Keppra can and does treat all of the types of seizures I listed.Keppra has reduced the number of seizures I was having. It shortened the time in thos seizures. It also shortened the time it takes to get back to normal.Medications and dosages can be set with a persons weight. Which means changes in weight can change the levels in the bodt and a person can have a breakthru seizure. I had to have my dosages changed 4-5 times when changing from a kid to a teen. The time period was about a year. the weight change was 50-60 lbs. The change in height was close to a foot. Also hormone changes happen when a person changesfrom a kid to a teen. So as she grows please keep an eye on thenumber of seizures because those changes will effect the levels of medication in her body. I would also tell yo uit might be a good thing to get the My Epilepsy Diary and use it. The note pad can be used to note differences in what she was doing that day or at the time right before the seizueres. The diary has a video which helps. So watch the video and if you give her neurologist permission to bring it up he can look st the graphs and other things in it which could help him/her come up with different ,edication, dosages and procedures. I do hope this he;ps and she gets seizure free. Joe