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5 year old. Focal Sensory? Treatment?

Sun, 04/10/2016 - 16:32
Our 5 year old has had a number of seizures since she is 3. They almost always happen within 2 hours of going to sleep. There seems to be a clear link to this happening when she has the flu/fever etc. She has had an MRI which was normal and 2 EEGs. We went to respected neurologist specializing in Epilepsy and he thought she has rolandic benign childhood epilepsy. However he didn't see this confirmed in the EEgs we brought him. He leaned towards not treating with medicine. Last week she had 2 more episodes, and she had a fever/flu. We filmed one of them and shared it with the doctor today. He called me to say that he is thinking we are looking at "focal sensory" rather than what he had thought. So he suggested we start with medicine - ospolot. Starting with 1/4 pill, building up to 1 a day before sleep. He told us that this medicine isn't used in the US (we are in Israel) but that in Europe it is used. So....this is all very new. I'm interested in knowing more about "focal sensory" seizures and/or ospolot. When he thought it was "rolandic benign" it was reassuring to hear that in most cases it is gone by age 16. what about with "focal sensory"? What can we expect etc? thanks

Comments

My diagnosis back in the mid

Submitted by just_joe on Mon, 2016-04-11 - 13:26
My diagnosis back in the mid 60's was Grand Mal. Petite Mal and Focal Motor epilepsy. grand mal seizures are todays tonic-clonic seizures, Petite Mal seizures are todays absence seiures. Focal Motor epilepsy can land in several areas. Focal seizures start in one area of the brain. if they stay there the will look like the person is in a daydream. They can generalize and move into partial seizures.As a teen mine would generalize and those would look like tonic-clonic.The MRI is used to see anything that is different or wrong in the brain. With me they found scar tissue ib the left lobes. The body heals itself and that also includes the brain. So if there is a brain cell that is different then it can heal itself over a period of time.I hope this helpsJoe

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