31 - Tonic Clonic Out of the Blue

CDC funded page

Not a CDC funded Page

I'm trying not to panic because the more people I talk to, the more aware I am of how "common" these things can be, and that they can be dealt with if necessary.

That being said, I would really appreciate any perspectives that could be offered with regard to my circumstance:

I'm 31 and was at a water park out of town with my eight year old son, my father and his new wife. I hadn't seen my father in 17 years but, things going quite well and being on the second day of our visit, I don't find that particularly significant. I've been told I was walking around after my son, just sat myself down and had a big, fat, grand mal seizure out of nowhere. Of course, they called the ambulence (bill is pending, fml). MRI, CT and EKG came up clean and, since spparently nobody finds this to be an emergent case, my EEG should be coming up this week. They put me on Kepra and forward I roll.

My visit with a neuroligist seems to have produced more questions than answers. No family history is present. I'm a very healthy female with low body fat. The amount of physicial exertion, alcohol intake, fatigue is NOTHING compared to how I roll in Vegas when I play in an annual tournament. In fact, I was on an actual not-Las-Vegas vacation which means my usual quesitonable behaviors may have even been somewhat mitigated. I'll be the first to admit I smoke the marijuanas, but thats about it. I had, literally, two beers the night before.

Help...please. I live alone with just me and my son. He was whisked away to play during the "event", but I don't want him to see or deal with anything like this in the future.

Comments

Welcome how "common" these

Submitted by just_joe on Sun, 2014-07-06 - 10:54

Welcome how "common" these things can be As far as being healthy and everything else you posted that means very little since anybody at any age whether rich or poor can get epilepsy. Which most people can not believe or even think about. MRI CT and EKG are general tests done in all ER's to see that your heart is working right. The CT and MRI show if anything has happened like a hemmorage to the head anything different shows up. If your seizure was over then they have taken care of imediant need which is why you were released. The EEG is a test which shows the electrical impulses in your brain. In many cases they come out normal. I had 15-20 which came up normal before one came back with abnormalities (seizure activity). That test will show where the activity is and by knowing that they will look closer at the MRI in the area the EEG showed. By doing that they may fine things over looked which can happen. The neuro-angeogram (MRI of the 1960) came up normal. The last EEG showed them the area to look at closer. After they looked closer they found scared brain tissue which came from a hemmorage to the brain. A blow to the head caused the hemmorage. So they do check for a lot of things. My visit with a neuroligist seems to have produced more questions than answers You have been prescribes the best seizure medication I have ever used. I have sued almost every AED that has been used in the last 50+ years. It not only controls my seizures it also reduces the time in them and the time to get back to normal. A seizure that used to last 1-2 minutes and time to focus was 15-45 minutes are nor 1-3 seconds in the seizure and 3-8 seconds to get back to normal. I can have one and if in a group of people discussing something those people would no nothing about the seizure. The neurologist will probably set up another appt to see how th keppra is working. In that appt he will either raise or lower the dosage. Then another appt will be set to see how the medication is working. With medications and dosages it is trial and error. A medication that works for one person may not work for the next and the dosage is the same. As for your fear of having another grand mal seizure I can see your point and I also know your fear. But I also know that you may not have another one. My first seizure that was known was a grand mal which happened at school. I haven't had another grand mal seizure in the 50+ years I have been living and dealing witrh epilepsy. Your wanting to shield your son is a good thing and I know where you are comming from but what would he think if a kid his age ahd one? It might be a good thing to address this issue and teach him what to do if he ever sees someone in a seizure. Oh and there are 40+ different types of seizures. So not all seizures are grand mal. It is also fact that most seizures are not grand mal, I would also suggest you get the My Epilepsy Diary. It is in the get help section. Watch the video which tells you how to use it and what it can do. I do hope this helps and your neurologist gets you seizure free. Joe

Welcome how "common" these things can be As far as being healthy and everything else you posted that means very little since anybody at any age whether rich or poor can get epilepsy. Which most people can not believe or even think about. MRI CT and EKG are general tests done in all ER's to see that your heart is working right. The CT and MRI show if anything has happened like a hemmorage to the head anything different shows up. If your seizure was over then they have taken care of imediant need which is why you were released. The EEG is a test which shows the electrical impulses in your brain. In many cases they come out normal. I had 15-20 which came up normal before one came back with abnormalities (seizure activity). That test will show where the activity is and by knowing that they will look closer at the MRI in the area the EEG showed. By doing that they may fine things over looked which can happen. The neuro-angeogram (MRI of the 1960) came up normal. The last EEG showed them the area to look at closer. After they looked closer they found scared brain tissue which came from a hemmorage to the brain. A blow to the head caused the hemmorage. So they do check for a lot of things. My visit with a neuroligist seems to have produced more questions than answers  You have been prescribes the best seizure medication I have ever used. I have sued almost every AED that has been used in the last 50+ years. It not only controls my seizures it also reduces the time in them and the time to get back to normal. A seizure that used to last 1-2 minutes and time to focus was 15-45 minutes are nor 1-3 seconds in the seizure and 3-8 seconds to get back to normal. I can have one and if in a group of people discussing something those people would no nothing about the seizure. The neurologist will probably set up another appt to see how th keppra is working. In that appt he will either raise or lower the dosage. Then another appt will be set to see  how the medication is working. With medications and dosages it is trial and error. A medication that works for one person may not work for the next and the dosage is the same. As for your fear of having another grand mal seizure I can see your point and I also know your fear. But I also know that you may not have another one. My first seizure that was known was a grand mal which happened at school. I haven't had another grand mal seizure in the 50+ years I have been living and dealing witrh epilepsy. Your wanting to shield your son is a good thing and I know where you are comming from but what would he think if a kid his age ahd one? It might be a good thing to address this issue and teach him what to do if he ever sees someone in a seizure. Oh and there are 40+ different types of seizures. So not all seizures are grand mal. It is also fact that most seizures are not grand mal, I would also suggest you get the My Epilepsy Diary. It is in the get help section. Watch the video which tells you how to use it and what it can do. I do hope this helps and your neurologist gets you seizure free. Joe   

Welcome how "common" these things can be As far as being healthy and everything else you posted that means very little since anybody at any age whether rich or poor can get epilepsy. Which most people can not believe or even think about. MRI CT and EKG are general tests done in all ER's to see that your heart is working right. The CT and MRI show if anything has happened like a hemmorage to the head anything different shows up. If your seizure was over then they have taken care of imediant need which is why you were released. The EEG is a test which shows the electrical impulses in your brain. In many cases they come out normal. I had 15-20 which came up normal before one came back with abnormalities (seizure activity). That test will show where the activity is and by knowing that they will look closer at the MRI in the area the EEG showed. By doing that they may fine things over looked which can happen. The neuro-angeogram (MRI of the 1960) came up normal. The last EEG showed them the area to look at closer. After they looked closer they found scared brain tissue which came from a hemmorage to the brain. A blow to the head caused the hemmorage. So they do check for a lot of things. My visit with a neuroligist seems to have produced more questions than answers You have been prescribes the best seizure medication I have ever used. I have sued almost every AED that has been used in the last 50+ years. It not only controls my seizures it also reduces the time in them and the time to get back to normal. A seizure that used to last 1-2 minutes and time to focus was 15-45 minutes are nor 1-3 seconds in the seizure and 3-8 seconds to get back to normal. I can have one and if in a group of people discussing something those people would no nothing about the seizure. The neurologist will probably set up another appt to see how th keppra is working. In that appt he will either raise or lower the dosage. Then another appt will be set to see how the medication is working. With medications and dosages it is trial and error. A medication that works for one person may not work for the next and the dosage is the same. As for your fear of having another grand mal seizure I can see your point and I also know your fear. But I also know that you may not have another one. My first seizure that was known was a grand mal which happened at school. I haven't had another grand mal seizure in the 50+ years I have been living and dealing witrh epilepsy. Your wanting to shield your son is a good thing and I know where you are comming from but what would he think if a kid his age ahd one? It might be a good thing to address this issue and teach him what to do if he ever sees someone in a seizure. Oh and there are 40+ different types of seizures. So not all seizures are grand mal. It is also fact that most seizures are not grand mal, I would also suggest you get the My Epilepsy Diary. It is in the get help section. Watch the video which tells you how to use it and what it can do. I do hope this helps and your neurologist gets you seizure free. Joe

31 - Tonic Clonic Out of the Blue

Comments

Welcome how "common" these

Submitted by just_joe on Sun, 2014-07-06 - 10:54

Sign Up for Emails