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3 years with seizures and no diagnose

Wed, 02/22/2017 - 13:21
Hi,I'm gonna try to make this short.3 years ago I've started to experience seizures,they're very violent,agressive,I loose conscious,my head hurts,they start without warning,sometimes I feel Dizzy before they happen,sometimes its strange smell.Recently I've discovered that I'm sensiive on flashing lights.I've been to doctor and neurologist I've done EEG MRI and CT all of them were negative.THey told me I have PNES and they sent me to psychologist.They also told me within few months it will go away.It's been Three years I've lost my job,my fiancee has to stay home With me because I can't be alone.Durin seizures I hurt myself,I have nose bleeds,fractures,I end up at emergency almost every week.I've asked for another evaluation and testing but I was declined.THey said that video monitoring shows me holding bed sheet which prooves I don't have epilepsy.I mean I saw People who have epilepsy they hold stuff strongly during seizures they can't Control it.My psychologist excluded posibility of having PNES claiming there is no possible psychological problem that might cause such seizures.I've asked another appointment after at the emergency I had 3 seizures in the row and Medical staff asked for another scan which hospital declined.I don't know what to do.I have all symptoms of epilepsy so they all say,the only one who can actually help me and that's enurologist says I have PNES after only one exam.I've found out that some epilepsy is not visible on eeg or mri or ct.My 10 year old daughter is now visiting psychologist because of trauma she experienced while I had seizures.10 year old kid should not see his parent in such state.If there is anyone With similar experience or someone who can give me some advice what to do I'll be Grateful.Thank you.

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