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16 months old baby with seizures - need help
Fri, 04/07/2017 - 04:53Topic: New to Epilepsy.com
Hi,
My niece who is about 16 months had 2 episodes yesterday. This is the first time. She has never shown any signs till yesterday.
The first one lasted about 15 seconds, she passed out for about 5 minutes n then she went to sleep - I know this cuz she put her thumb in her mouth which she does when she sleeps. The doctors at the ER checked her temp-normal, her oxygen level had dropped to 92 so they put her on oxygen n it increased to 98. Blood sugar was normal.They referred us to a diff hospital as they wanted a neurologist to check whats happening.
The second episode happened when we brought her to another hospital. This was worse. She was behaving like herself by this time..n her body suddenly stiffened, her face n lips turned blue.. the ER medics had to clear her airway for her to breathe n then the doctor put her through few scans.
MRI - report shows normal
EEG - shows normal
ECHO - shows normal - this was done less than an hour ago.
The cardiology doctor said everything is fine and that it has something to do with neuro.
Now this is all new.. and all the information Im getting about these seizures and epilepsy is from the web.
I would like to know if anyone out there has any suggestions or thoughts.. anything that can help.
My worry is, if they are unable to point out what is wrong then how do we say this wont happen again.. at home.. we might not know what to do..
As I am writing this I can hear her fussing cuz she hates staying here and she wants to go home..
Has anyone here had any experience similar to this.. anything.. I am ready to accept any suggestion.. please help
Well if the EEG was short
Submitted by just_joe on Fri, 2017-04-07 - 12:53
Well if the EEG was short then it might not have picked up the abnormalities the neurologists want to see. I only had 20-25 different EEG's that came back normal. Then I had one in which I fell asleep in. That EEG was longer and I slept in part of it. What starts a seizure is an electrical impulse hitting wrong (abnormal) in the brain which causes a chain reaction (the seizure itself). If the abnormalities are seen they then know the origin of where the seizures start.Medications are the first type of treatment to stop seizures.The MRI should have been of her brain. It shows them what the brain looks like and if ANYTHING is different. Things like a growth on the brain or a tumor. Cell formations that grew wrong. For me it was scar tissue caused by a blow to my head. if they are unable to point out what is wrong then how do we say this wont happen again Yes she can have another seizure. But it medications are started then they can be controlled. After I was put on medications I still had a seizure now and then. But I haven't had another grand mal (tonic-clonic) seizure. Oh just so you'll know it that seizure was back in 1963-64. Newer medications have shortened the number of seizures I was having and the length of time in them. I went 3 years without any seizures. But I had one. Today I have a seizure every 8-14 days and they last 3-5 seconds. My regular doctor didn't know I had one in his office while in a visit and I was answering his questions. He knew how long those seizures used to last (5-8 minutes) and the time it took to get back to normal (15-45 minutes) so that 3-5 second delay he thought was trying to figure out which word I wanted to use.She is no different then the kid next door except for the time in the seizures. Do not let her epilepsy control how you treat her.