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Lost time and Decisions without memory

Tue, 10/07/2014 - 12:51

My seizures have been changing throughout my life. Diagnosed Video Game at 10yrs old. Got an EEG and was diagnosed with JMJ at 23. I was seizure free for 12yrs and then had 4 Tonic-clonics 7/1/2 minutes for one and 6min for the others at 27. Later I had some complex partials here and there and then was seizure free for 4 years. This past June I had something new happen. I lost time for an hour but functioned throughout. I managed to pull my car over and had an episode and woke up in my room an hour and a half later. I have only been able to paste together a few shapes and colors. I have a time line of where I was because I must have felt the aura and pulled into a parking lot I'd never been in or needed to be anywhere near. I bumped a parked car and drove home. I have insurance so there was no need to drive off but I wasn't aware of anything. Next thing I knew my roommate was waking me up and the Police were at the door. Has anyone ever lost that much time before. I had not before now. 

What's more, I awoke to discover that I was drunk and getting drunker while talking to the police about a hit and run I didn't know about. I couldn't answer their questions because of the seizure and they assumed it was alcohol related. I'm an alcoholic in recovery I had not had a drop of alcohol in months. Irony can be so cruel. My drinking has always been in association with numbing my experiences surrounding my Epilepsy. I've been working to change that however this time, I followed an old pattern which is to drink my troubles away after a seizure but I've never not been aware that I made that decision. I was arrested for a DWI, but the only thing I was driving while I had alcohol in my system was my couch.

I'm in a very deep depression not only due to the seizure event itself but also to an unintentional relapse that folks believe to be irresponsible behavior operating a motor vehicle. I'm being treated as though I drank then drove and hit a car when that is not the case. I think I'm just plain screwed.

I've been kicked out of a practice for writing an appropriate complaint based in feedback about being rushed out the door rather than listened to when I was telling the doc I was scared about having a 7/1/2 minute seizure after 12 years of being seizure free. Who does that to someone? Am I crazy for wanting some compassion? They kicked me out of that practice and no other doctor would take me that worked within it.

At my current doctor's office I'm afraid to report an incredibly rude front desk operator who talked over me, used a demeaning tone, and HUNG UP on me when I was still asking her a question about getting . I'm afraid to get kicked out of this practice too because then I would have to travel to Charlotte from Asheville NC with no transportation. My neurologist is insensitive and won't treat me because I had just changed jobs and was in the 90 day waiting period. Getting him to write a letter saying that he treats me for my condition to be presented to a judge has been like pulling teeth. Does anyone out there have a Neurologist that will look them in the eye with anything resembling a bedside manor? I sure as heck haven't of the 5 that I've had in two states. I'm consistently treated as though I'm merely a pin cushion for a level check and that's about it. 

There is no epilepsy support group within a two hour drive from here either. I'm feeling pretty alone out here so I just threw it all up here. I don't know what to do. A short while after a lot of stress is past me is what brings them on and I'm continuously under duress with all of this. I'm afraid another one will hit me once the pressure releases a bit

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