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How do I earn an income anymore?
Sat, 06/06/2015 - 03:01I have had seizures since I was 21 years old, I am now 41. I worked in the field of construction and pushed it as far as I could and was forced to finally find other work due to the seizures. Walking stilts and climbing scaffolds was becoming a little bit too much for my nerves. About 12 years ago I started working at a casino as a Slot Technician. I've always been stubborn with my seizures, having a Grand Mal seizure, and forcing myself to work anyway. I had "special" shoes for those days that I could slip on since I had such a hard time to bend down to put shoes on after having a seizure, but I know I am not the only one here to experience that. I always had a fear of being something less than I could, or should be. Also, I was afraid of letting my family down. I never wanted my children to see me as helpless. I'm their father, so of course I always wanted to be that sense of stability they could look to and know was there when they needed. I guess I never wanted to seem weak in their eyes. So I just kept pushing forward after each seizure as if it never happened. I am on meds. Dilantin. My seizures are so sporadic that it's always hard to tell anyone when I get the question, "How often do you have them?", because maybe this month will be a beautiful 0 and next month may be a painful 3 within 2 days. Not to mention the anxiety attacks and panic attacks. We are all so individualized with our seizures that I think only we "know" and it is so hard to express what someone else is wanting you to express to them.
My problem now is I am not allowed to drive anymore. I had to let go of my job. The supervisor I had at the time was making me change shifts weekly. One example was when he come in and told me out of the blue "Don't get to happy thinking it's your friday because tomorrow you're coming in for your monday on nightshift." I had told them so many times that I needed a little advance notice to prepare for changing shifts, but it really seemed like he was pushing it trying to cause problems for me. They were able to take a job that I actually loved and was good at into a nightmare for me. I finally couldn't take it anymore and I had to walk away. Now I have been out of work for over a year. I have been told now that I cannot drive anymore. I am divorced now and have child support stacked up so high that I can't see how to get out. I have been turned in by my ex-wife for child support. I was never never never ever late for any payment in my life, especially child support.
But, cannot drive to go to any job. I live in an area (rural) that is so damn far from anything, and there are no forms of public transportation here. I actually broke down and applied for disability, but was turned down. That was an interesting event to say the least. I had to see a psychcologist for the disability claim. When I walked in he asked me, "What's your problem?" I said, "Excuse me?" he said, "Your problem, what are you here for? Disability, right? So you must have a problem you want to tell me about." I said, "Well, I have anxiety and pani......." I was interrupted with "No you don't." What other problems do you have?" I said, "Well, I have seizures" interrupted again with "It's under control, so what else?" I told him he didn't understand, I have seizures from stress, I was cut off again and told that seizures are not caused from stress. He went on to tell me how the neurologist who diagnosed me, the family doctor, and nurse practitioner were all wrong and they all needed to be seeing him.
So you can see where the denial was inevitable. He let me know that if I drive after he told me that I couldn't, if someone was hurt, I would be charged with attempted murder, and if someone did die, well, yeah, murder.
I was told I was "Too disabled to drive" but not "Too disabled to work"
"Just have someone take me"
That does not work in the real world!
I am at a loss. I have never felt so lost in my life! I cannot pay the things I need to pay. I cannot transport myself to a job. I know there must be others who have faced, or are facing this. Any help would with how to handle this situation would be appreciated so much.
I'm sorry I put so much for what could have been a very simple question, but I think I needed to get it out of my system... Nobody around here to talk to.
Thanks for reading and responding.
Michael
MichaelYou are not the only
Submitted by Anonymous on Sun, 2015-06-14 - 16:37
MichaelYou are not the only one that has problems applying for disability. Many people apply yearly and most of the time they are delied withing 6 months. They reapply and can be denied again. I know I have read about a lot of cases this has happened to. I also know my neurologist has told me about some of his other patients who had had problems.After I was laied off I knew I would have issues while applying. Rather then geting denied 2-3 times before it was approved I went to Binder & Binder. They asked me questions and filled out the forms and while I was there I had a simple partial seizure. That helped some but with most of their cases HHS offices start you on medicaid. Within 2 months I had it and 3-4 months later it was switched to medicare (basically because I was close enough to the age needed).As for the cost.. I was charged 1000 bucks but they got paid by the government so I paid nothing. Look up Binder&Binder they have a toll free number and offices in most states. http://www.binderandbinder.com toll free number is 800-662-4633 American's Most Successful Social Security Disability Advocates I hope this helps and you get the assistance you needJoe