TOPOMAX ....

Good Morning All So heres a little of my history. I'm 36 year old female diagnosed at 35 with partial seizures in October of 2015. No head trauma. no explanation why I have this. First neuro put me on Keppra 500 mg 2x a day. Worked up to 750 mg 2x a day still wasn't working so he added lamactil, I got hives, he added trileptal, got hives, he added zonegran, I had trouble brathing but he never examined me when I had these reactions just told me over the phone to stop taking them and prescribed me other meds so I didn't like that and I switched to another neuro. he did a Mri and found I had left mesial temporal sclerosis, still no explanation but he increased my keppra to 1000 mg 2x a day and sent me on my way. since he was 3 hours a way and really didn't seem to listen to me I decided he wasn't for me and found my 3rd neuro who is only an hour away. she listens, and vows to help me. she spends a whole hour in the room with me listening every visit and calls me to check on me. when my husband and I expressed our concerns about the keppra rages and how it was affected our relationship and how I was still having the partial seizures she ordered another eeg which came back abnormal she wanted me to wean off of the keppra and put me only on topomax. she warned me it would be rough for a while. It was a 9 week plan to switch. I took my last keppra last week. we slowely decreased the keppra while slowly increased the topomax. I was fine until we increased the topomax to 100 mg 2 times a day. OMG I am in so much physical pain while still having seizures. More seizures I think than I ever had! I think I miss the keppra. I called her yesterday and told her I think I'm taking too much topomax and she said I might need to find another medicine. I don't want to swictch again. I'm wasting my life and my family's being sick I have 3 children that are watching me lay around while i'm getting used to yet another medicine. I know you all know the feeling.. yesterday I did what she told me by decreasing to 75 mg of topomax my morning and night doses and I feel a little better. i'm hoping I can just stay here. maybe I can add a little keppra back for the seizures. I also have a prescription for klonopin for the cluster seizures. the pain that I'm in, please tell me if you're on topomax and you've felt this. I feel like someone has literally rubbed icy hot all over my body. I'm BURNING EVERYWHERE my bones hurt, my arm goes numb which she said is normal, my head hurts around my eyes, got my eye pressure checked, normal.. and I can't sleep at night I wake up all hours of the night..I think I'm seizing at night which I've never done but i'm not sure if I was dreaming, almost like an out of body experience, but I wake up so sore..i'm just not sure how much more I can take of this medicine and why can't I handle any aed!!!