need a friend

Hi my names lorna iam maarried with 2 lovely kids molly 2 1/2 callum 9/1/2 callum has epilepsy from a early age he was 1 yr old when diagnosed and we went through a long period accepting what was going on not fully understanding why us life can be so cruel cant it when callum was a baby he was very jerky now we know why quiet hardly cryed but contented wee boy at 3 months old he was choking in his cot i picked him up he turned blue was like a rag doll thought we had lost our baby that was the most terrifying night of our lifes he was taken to hospital over nite home next day viral infection on antibiotics so every time callum had temp he would have convulsion. His poor body going into spasms it was awfull at year diagnosed epilepsy we had lots stays at hospitals callum at his worse having drop attacks atomic epilepsy think its called that had have helmet fitted hed fall smack his head anywhere it was horrible to see like time bomb going of any time we did get used to all his seizures but i still cryued for my baby i had lost to this awfull condition taken away his life and so cruel we felt callum is now getting better at 3yrs old he went into status epilepsy and nearly died very scarey time i had to fly to glasgow with him having seizures all the way got it stopped we steriods felt i was losing him had never fly before least ma worrys peer child lying fitting i was so afraid and alone then he s now 9 and half dr felt lets stop meds one he takes wean of gradually well went 5 days and took seizure in bed needing madazalom 5 minutes he fitted for was sick so horrible for him last seizure 8th november complex partial the wandering about one eyes wide in his own world just wish hed have breakl fae them every time drugs weaned down body doesnt cope has be on them all the time behaviour nae good on such large doses have that 2 seizures but what life hes got its nae fair any true freeinds out there got advice greatly appreciated mebe i could help someone going through same as me i will try thanks lorna