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Need advice about Trleptal changing
Thu, 01/15/2015 - 16:47
Hi. So I've been on Trileptal for about 15 years at the max dosage of 1200 mg per day. Trileptal causes low "normal-ish" serum sodium levels but lately it's taking a dip and I am being advised to switch. While I do the neuro referral dance (don't have one here) I'd appreciate any comments anyone may have regarding successful experiences with changing meds and meds that you have found play well with a beta blocker (propanolol), amlodipine, and lisinopril (all three are for high blood pressure). I am very worried--in the past neuros have just handed me bags full of samples. And who pays for sample fails? We do. I have very violent seizures and become combative in the post-ictal phase.
I have enjoyed years of being seizure free and regularly inspect high-hazard environments--chemical plants. Not an ideal location for someone diddling around with new meds!!
Btw, if anyone has a suggestion for good neuros near Bellingham, WA I'd appreciate. Thanks!!
If you need a new neurologist
Submitted by just_joe on Fri, 2015-01-16 - 11:59
If you need a new neurologist look for one in the get help section on this site. As for changes in medications the neurologst will know the medications that treat your seizures better and all of your doctors need to know all the medications you take daily. By knowing that the doctors will not prescribe medications that will counter your other medications. When I was taking trileptol I had my levels checked yearly because the neurologist required it. That way he knew if my levels were where they needed to be. My levels were off which is why my medications were changed.There are many medications out there that are newer and have fewer side effects. One of the go to medications is Keppra. It has reduced the number of seizures I was having and the time in those seizures I hope this helps and yo uget the mediaction you need Joe