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Is this medicine malpractice?

Sat, 02/20/2016 - 03:40
Hello all, and sorry for a long story but just looking for guidance. I was born with a rare disease called Blue Rubber Bleb Nevus syndrome(BRBNS). Now this isn't really the cause of my issues but it played into it. About 4 years ago everything started, first I was having vicious headaches and after seeing doctors I was out on Vicodin which to a degree assisted with the issue. But this didn't go away so I started going to one of top hospitals in USA. Because of the BRBNS I have I was instantly seen by 12 doctors at a time for the rarity of my disease which only effects my leg. Well from there I was sent to see many doctors as mri showed malformations in my left temporal lobe and brain stem. I seen atleast 20 doctors in weeks at this place. One of them was a headache specialist that was not approving of Vicodin and wanted me to switch to Valporic Acid, she also injected me with a test medicine that is not in my records at all. Please understand at this time I was having a hard time. So I did what I was asked and switched meds. This medicine caused various issues to the point of falling down stairs. My regular doctor who really cared about me that I seen at a Health Department was extremely worried about this medicine as she was always on top of my health issues. She found that Valporic Acid thins the blood enough to cause hemorrahg. I stopped immediately, at my next mri bleeding was found in my malformations and I started to have seizures about 8 every time 12 hrs where I was just gone from my mind and seen it myself after staying at the main hospital for a week. A month later I was notified of brain surgery requirements. My seizures have drastically reduced. My question is, if this was all caused by Valporic Acid from a doctor who thought the pain medicine I was on was the worst but her med caused everything, is there anything I can do? I don't want others in this situation because some one couldn't verify their history. Please share your thoughts I'd greatly appreciate it.

Comments

vicious headaches are [arts

Submitted by just_joe on Sat, 2016-02-20 - 10:50
vicious headaches are [arts of some seizures. The MRI showed malformations in my left temporal lobe and brain stem. So many doctors were seeing you. one you posted about was a head ache specialist. Can you remember if any of those doctors was a neurologist specializing in epilepsy? A seizure (there are many types) starts when a electrical impulse hits wrong in the brain. That hit causes a chain reaction which is the seizure itself. The tests use to diagnoses epilepsy is an EEG and a MRI. EEG shown the electrical output of the brain. The MRI shows the brain. The MRI was done and you posted what they said. If what they said was seen by my neurologists then they would have started medications. Depakote is a medication used to control seizures. It takes time for your body to get used to the medication and the therapeutic levels to build up to where the doctor wants them. The valporic acid took time and if the number of seizures has been reduced it is doing it's job. If the doctor injected you because you were having a hard time that medication might have been a medication used to calm you and your body down. You might have been having seizures you don't know about and she injected you with a recover medication. But then without being there I can't really say.

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