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Lamictal and my first grand mal

Sat, 06/28/2014 - 19:59

I'm new to this website, but could really use some insight from anyone who could help.  I was officially diagnosed with epilepsy about 2 years ago.  However, I had been having them since middle school and just didn't know it.  Once I hit the ago of 23 I started experiencing complex partial seizures which I had the hardest time explaining.  It took awhile to get diagnosed (about 3 years) but once I did the doctor started me on lamictal.  I stopped having the seizures altogether. However, he had mentioned that in a few years maybe I could try coming off the med completely.  Now I'm a nurse, so I should know better but I was getting kind of bad at remembering to take my meds and still wasn't having any seizures.  Since he had mentioned me eventually coming off of them I sort of assumed that I had outgrown the epilepsy like some people sometimes do.  I should also mention that I was working nights and I find it very hard to sleep with the lamictal which just makes things that much more difficult.  Anyways, I had started to have a few more complex partial seizures but not very often, I planned on going to see my neurologist and asking to try a different med.  Well this Thursday I had my first grand mal seizure.  (I was apparently stressing myself out over picking out my scrub top for work). My poor boyfriend was woken up by our petrified dog and saw me foaming at the mouth and coughing up blood so he called 911 and I ended up in an ambulance and off to the ED.  I never thought I would have a grand mal and it truly scared me.  I have begun taking the lamictal again until I see the neurologist.  I'm wondering how long it takes to work usually? I go back to work tomorrow for a 12 hour shift and I would be so embarrassed if it happened at work.  Any insight anyone else has would be great.    

Comments

Please call your doctor,

Submitted by Anonymous on Sun, 2014-06-29 - 01:34
Please call your doctor, lamotrigine isn't something one should stop or start at full dosages, and tomorrow is too soon for the drug to hit a steady state in your system. 

You are one lucky lady.

Submitted by just_joe on Sun, 2014-06-29 - 10:42
You are one lucky lady. Stopping your meds without your neurologist knowing is not a good idea. Bemn there done that. I stoped taking mine but instead of having one seizure I would up in status epilepticus I know the med you are on works. I also know that there are others that work. New medications are being tested so the next time you see your neurologist discuss this issue with him. Ask him if there are other medications that can control your seizures better. Aks him if the medication has a extended reelsae dosage so you take it once a day. Oh and find a watch with an alarm and set it for pill time. I used my nokia 6010 to take pills in the middle of the day I do hope this helps and you get the assistance you need and do come back and let us know how things are going Joe

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