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Increasing Felbatol and have no other meds to choose from!

Thu, 06/16/2005 - 17:13
I saw my neuro today and he increased my Felbatol to 6 cc's 3xday.I've finally come off the Phenobarb altogether.I don't care keep having nocturnal seizures and biting my tongue.swallowing is still hard when I eat and I just want to scream.SO there is no othere options for me.SO I just give up.Looks like cold turkey would be etter for me.Belinda

Comments

RE: Increasing Felbatol and have no other meds to choose from!

Submitted by txrhb1 on Fri, 2005-06-17 - 23:11

Hi Belinda,

I am so sorry that you are having such difficulty.  It must be really hard for you!  Please don't give up!  Please know that my thoughts are with you, and someone is here pulling for you.

Barb

Hi Belinda,

I am so sorry that you are having such difficulty.  It must be really hard for you!  Please don't give up!  Please know that my thoughts are with you, and someone is here pulling for you.

Barb

RE: Increasing Felbatol and have no other meds to choose from!

Submitted by lucysherrouse on Sun, 2005-06-19 - 13:16
Hi Belinda,
 
I am in the same boat with you. Presently, I am taking one 600 mg. pill twice a day. Felbatol is my last ditch effort as I tried all the meds (old/new) and had seizure surgery 12 years ago. I find that the Felbatol doesn't cause me to feel sleepy; in fact I have had difficulty with insomnia. I however, lack energy during the day and feel drained. I am taking Keppra along with it however, expect to be gradually taken off from Keppra and placed on Felbatol - only. I am glad you wrote and hope to hear back from you. Please don't give up. Take care, Lucy
Hi Belinda,
 
I am in the same boat with you. Presently, I am taking one 600 mg. pill twice a day. Felbatol is my last ditch effort as I tried all the meds (old/new) and had seizure surgery 12 years ago. I find that the Felbatol doesn't cause me to feel sleepy; in fact I have had difficulty with insomnia. I however, lack energy during the day and feel drained. I am taking Keppra along with it however, expect to be gradually taken off from Keppra and placed on Felbatol - only. I am glad you wrote and hope to hear back from you. Please don't give up. Take care, Lucy

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