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getting off tegretol (carbamazepine)

Mon, 10/16/2006 - 21:46
hi, i'm ben. this is my first post on this site. i had my first seizure when i was 19, one random morning before class. i didn't know i had had one until a few days later after putting all the clues together, talking with my father who recognized the symptoms i described (sore muscles, unidentified cuts, bruises, etc.). i was prescribed to tegretol, 300mg/2x day. i took it for a few years without having another seizure. say what you will about weighing the pros and cons, but this medication makes me feel dull and slower. i gained weight. i fumble over words. i'm not as quick and witty as i once was. that is not to say that i'm unable to function socially... i do fine. it's just that i can FEEL the difference, and it sucks. i stopped taking my meds for about a month. things couldn't have gone better. i wrote a screenplay, started eating right and exercising, lost a whole lot of weight and felt great. i graduated school that year, moved to l.a., got a job. got my own place. things were good. then, one morning, i had a seizure again. i had to go back on meds. i couldn't drive for 3 months (which is essentially house arrest in l.a.), i had to leave my job. i was depressed, put back on all the weight and then some, stopped writing, etc. etc. etc... now i'm doing better, but not that much better. i know i could be smarter, quicker, wittier, happier... i hate being tied down by these pills... having to remember to take these mf's every morning at night. i know there are people on this site which much more serious symptoms than me, who live happier lives with more positivity. i probably make these people sick, and i apologize. i don't want to be 'debbie downer'. but i just want to stop taking these meds... but i know what happens if i do. does anyone have any advice? ideas? thanks for listening. ben

Comments

Re: getting off tegretol (carbamazepine)

Submitted by Terri N. on Mon, 2006-10-16 - 22:34
Hi Ben: Welcome to this site. I just started last week and still learning how it works! Have you talked to your doctor about taking a smaller dose or changing your med? It seems that if you didn't have seizures for a long time w/o med, you could be on a less strong dose or something that wouldn't change you while taking it. I take Neurontin and haven't had those problems. Good luck...it doesn't have to be that way I don't think! Terri N.

thanks for your response

Submitted by sidshivers on Tue, 2006-10-17 - 11:27
thanks for your response terri. i think that's a good idea.. titrating down... unfortunately, i don't have a doctor at the moment since i'm uninsured (an accident-prone guy's nightmare!) until december... but that will definitely be the first thing i talk to future doc about. thanks again for getting back to me.

Re: thanks for your response

Submitted by michelhead on Tue, 2006-10-17 - 11:54
Hey, No one here is going to judge you on how you feel about what's going on. Everyone on this site knows it's hard to deal with the seizures and with the meds. Like Terri said, I would advise trying to titrate down when you do get a doctor. Also, there ARE other meds out there that may have fewer cognitive side effects for you. Everyone is a little different so it's hard to say which ones, but keep your head up. Good luck and if you have any other questions, feel free to ask.

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