Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Hi they want to take my daughter off her meds. not sure what to do
Thu, 11/05/2009 - 15:39Comments
Re: they want to take my daughter off her meds.
Submitted by John Howe on Thu, 2009-11-26 - 22:38
Re: Hi they want to take my daughter off her meds
Submitted by jewels87 on Thu, 2009-11-26 - 02:38
Well, for starters, the doctors are going to say that every time she is at least two years seizure free with the medication. This has happened to my mom about me multiple times because I was diagnosed at 10 months old, and they would put me on a medication that would work keep me on it, then try something else and have to put me back on the one that worked. Every time I was two years seizure free on the medication they would ask my mom about taking me off the medication-they thought I would outgrow it, but I didn't. I'm 22 and still on the medication that has always worked for me, now I take care of things myself with a little help from my mom when I switch doctors because I was too young then. Your daughter may not even know when she has a seizure.
If you are unsure about what to do, my recommendation to you would be to keep her on the medication until you feel comfortable taking her off of it(for the doctors to do it, you would have to know that she is two years or more seizure free for sure). Taking her off medication can cause problems like it did with me where in some cases when the doctors try to take someone off medication and they have one or more seizures and the doctors try to put them on medication again-the medication doesn't always work right then and there is a lot of switching of medication or sometimes even more than one required. I really hope this helps you.
Well, for starters, the doctors are going to say that every time she is at least two years seizure free with the medication. This has happened to my mom about me multiple times because I was diagnosed at 10 months old, and they would put me on a medication that would work keep me on it, then try something else and have to put me back on the one that worked. Every time I was two years seizure free on the medication they would ask my mom about taking me off the medication-they thought I would outgrow it, but I didn't. I'm 22 and still on the medication that has always worked for me, now I take care of things myself with a little help from my mom when I switch doctors because I was too young then. Your daughter may not even know when she has a seizure.
If you are unsure about what to do, my recommendation to you would be to keep her on the medication until you feel comfortable taking her off of it(for the doctors to do it, you would have to know that she is two years or more seizure free for sure). Taking her off medication can cause problems like it did with me where in some cases when the doctors try to take someone off medication and they have one or more seizures and the doctors try to put them on medication again-the medication doesn't always work right then and there is a lot of switching of medication or sometimes even more than one required. I really hope this helps you.
Re: they want to take my daughter off her meds.
Submitted by jewels87 on Thu, 2009-11-26 - 02:37
Well, for starters, the doctors are going to say that every time she is at least two years seizure free with the medication. This has happened to my mom about me multiple times because I was diagnosed at 10 months old, and they would put me on a medication that would work keep me on it, then try something else and have to put me back on the one that worked. Every time I was two years seizure free on the medication they would ask my mom about taking me off the medication-they thought I would outgrow it, but I didn't. I'm 22 and still on the medication that has always worked for me, now I take care of things myself with a little help from my mom when I switch doctors because I was too young then. Your daughter may not even know when she has a seizure.
If you are unsure about what to do, my recommendation to you would be to keep her on the medication until you feel comfortable taking her off of it(for the doctors to do it, you would have to know that she is two years or more seizure free for sure). Taking her off medication can cause problems like it did with me where in some cases when the doctors try to take someone off medication and they have one or more seizures and the doctors try to put them on medication again-the medication doesn't always work right then and there is a lot of switching of medication or sometimes even more than one required. I really hope this helps you.
Well, for starters, the doctors are going to say that every time she is at least two years seizure free with the medication. This has happened to my mom about me multiple times because I was diagnosed at 10 months old, and they would put me on a medication that would work keep me on it, then try something else and have to put me back on the one that worked. Every time I was two years seizure free on the medication they would ask my mom about taking me off the medication-they thought I would outgrow it, but I didn't. I'm 22 and still on the medication that has always worked for me, now I take care of things myself with a little help from my mom when I switch doctors because I was too young then. Your daughter may not even know when she has a seizure.
If you are unsure about what to do, my recommendation to you would be to keep her on the medication until you feel comfortable taking her off of it(for the doctors to do it, you would have to know that she is two years or more seizure free for sure). Taking her off medication can cause problems like it did with me where in some cases when the doctors try to take someone off medication and they have one or more seizures and the doctors try to put them on medication again-the medication doesn't always work right then and there is a lot of switching of medication or sometimes even more than one required. I really hope this helps you.