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Your kind help and answers needed now
Sat, 06/23/2007 - 20:11Hi there:
My name is Raegan and I have a version of seizures which invlove both absent and complex partial so my days are really interesting at times. And; Like now the "aura" can last for a hour or more at times too.
I have a sensativity to sounds smells and bright lights combined with limited side vision and problems with time and comprehending things. And; This like I said is just the beginning of the seizures and real problems. Then; what follows...sometimes takes an hour or more to completely clear up. Afterwards it feels like I survived yet another "tornado" and am putting the pieces back together again and again.
So please please can anyone else relate to any of this because I currently live about four hours from my neuro and help here is limited (being kind). Finding others who can relate would really really help this girl in a time of need.
So; Thanks for everything and waiting for answers Raegan
Comments
Re: Your kind help and answers needed now
Submitted by Utah on Mon, 2007-06-25 - 02:31
Hi Raegan... sigh I can so relate to no one being able to relate. My name is Christine I was just diagnosed with Epi in late December. I've had four tonic clonic seizures and a lot of simple and complex ones. I don't have extended auras like you do nor do my seizures last as long as yours but damn if it isn't tough to deal and have others understand. I don't even understand ... I can hardly explain all the strange feelings I get. My neuro just keeps changing my medication. I understand that sometimes it takes years to find the right combination at the right dosage. Then there's the trying to untangle side effects from the condition. Anyway I just want you to know that I feel your pain. I wish there were more support groups out there. Blessings, C
Re: Your kind help and answers needed now
Submitted by coopernicus on Mon, 2007-06-25 - 00:59
Hi Raegan, How long have you had seizures? I have simples and they are very mild - thank goodness. I have only had one generalized seizure in my sleep. There is always that fear, though, that they will get worse. I didn't have any for several years but stress and perimenopause have brought them back. They are much more noticeable to me than before. I am reading a great book that is helping me understand them and keep a positive outlook. I got it used at Amazon.com and only paid a few dollars plus shipping. It is called Epilepsy: A New Approach. It is by Dr. Joel Reiter. I highly recommend it. It is upbeat and helps teach you to look for patterns, etc... so you can have more control (as much as possible). Best wishes, Coopernicus