who feels like I do

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I had my first seizure at 23 I'm now 29. I have had petite Mal seizures a little longer just never knew that's what they were.im on Trileptal and vimpat I've had about 13 grand mals in 6yrs. Lately I've been feeling not myself. Lazy kinda dumb like my brain is slowing down. It's hard to explain also. Been nauseous as well. Also I fell standing in shower.i feel totally different then I used to. I've always worked hard and been energetic. Now I'm depressed quiet and getting lazy. My family is what keeps me happy. Is it just me.

Comments

Welcome to the club DannI

Submitted by just_joe on Tue, 2015-01-13 - 19:03

Welcome to the club DannI read your posts. So from what I have read yo uhave had seizures for 6 years. You still have some seizures and you think you are slowing down and not with it all the time. You have worked for 13 years and things were fine until recently. Some of what you posted could be seizures. Others are simptoms of medications. Then there are some that lie between other things like not accepting epilepsy and doing what you can to control your epilepsy rather them letting epilepsy control you.I was diagnosed with epilepsy at the age of 14. I had been having seizures for about 2 years before that. The first seizures I was having were petite mal (AKA absence seizures today) I also had focal motor seizures (AKA partial seizures today). I had had both kinds of those seizures and had been written up for day dreaming in class. After I was diagnosed with epilepsy along with the kinds of epilepsy I never had my questions answered by the neurologist.

Finishing my post ^^^^^^^^I

Submitted by just_joe on Tue, 2015-01-13 - 19:24

Finishing my post ^^^^^^^^I research and read books to find out ust what epilepsy was since there were no forums or internet back in 1963-64. I learned to accept wjat I have and how to deal with things. I have never driven so I do know the draw back a person can have without driving. I finishes school and some college. I have had relationships and boy can those be tricky. I have been in my current relationship for 42 years. If I have a seizure I know I will be watched and taken care of. Just like the person watching will be checked on concerning heart attacks. As for disability___ I never wanted it because I was working. I may have had jobs that didn't pay the best in the world but jobs I have had. I moved from telemarketing to warehouse manarer to outside sales to office manager then to office manager which morphed into part owner of that branch. What it takes is knowing what you have and dealing with it and not let it tell you what you can and can not do. At the last job I had when I started it it took 3 hours each way to get to and from work. When I was let go during the last recession it only took an hour and 15 minutes each way. As for seizures and work... My employers either took me or didn't. I never held back any information about my seizures and the time I might be in them. By informing them I had the project managers watching me and learing how they wanted things done I moved up the ladder. Went from sales to customer service to executive appeals officer in a small department of AT&T,,,, Dann in order to do things I took my seizures out of the options. If I had one I had one. I went on as if things hadn't happened. I did it in school and at work. I would rather live my life fully rather then let my epilepsy and seizures control what I do and Where I go. As for triggers___ there are lists of them on thsi site. But mot everybody get those triggers. I have one which isn't listed but most neurologists know it can be a trigger. Getting too hot too fast. So you see I left the best job I ever wanted because I would have seizures arround ovens and flat top stoves and fryers. I do hope this helps Joe

Finishing my post ^^^^^^^^I research and read books to find out ust what epilepsy was since there were no forums or internet back in 1963-64. I learned to accept wjat I have and how to deal with things. I have never driven so I do know the draw back a person can have without driving.  I finishes school and some college. I have had relationships and boy can those be tricky. I have been in my current relationship for 42 years. If I have a seizure I know I will be watched and taken care of. Just like the person watching will be checked on concerning heart attacks.  As for disability___ I never wanted it because I was working. I may have had jobs that didn't pay the best in the world but jobs I have had. I moved from telemarketing to warehouse manarer to outside sales to office manager then to office manager which morphed into part owner of that branch. What it takes is knowing what you have and dealing with it and not let it tell you what you can and can not do. At the last job I had when I started it it took 3 hours each way to get to and from work. When I was let go during the last recession it only took an hour and 15 minutes each way. As for seizures and work... My employers either took me or didn't. I never held back any information about my seizures and the time I might be in them. By informing them I had the project managers watching me and learing how they wanted things done I moved up the ladder. Went from sales to customer service to executive appeals officer in a small department of AT&T,,,,  Dann in order  to do things I took my seizures out of the options. If I had one I had one. I went on as if things hadn't happened. I did it in school and at work. I would rather live my life fully rather then let my epilepsy and seizures control what I do and Where I go. As for triggers___ there are lists of them on thsi site. But mot everybody get those triggers. I have one which isn't listed but most neurologists know it can be a trigger. Getting too hot too fast. So you see I left the best job I ever wanted because I would have seizures arround ovens and flat top stoves and fryers.  I do hope this helps Joe

Finishing my post ^^^^^^^^I research and read books to find out ust what epilepsy was since there were no forums or internet back in 1963-64. I learned to accept wjat I have and how to deal with things. I have never driven so I do know the draw back a person can have without driving. I finishes school and some college. I have had relationships and boy can those be tricky. I have been in my current relationship for 42 years. If I have a seizure I know I will be watched and taken care of. Just like the person watching will be checked on concerning heart attacks. As for disability___ I never wanted it because I was working. I may have had jobs that didn't pay the best in the world but jobs I have had. I moved from telemarketing to warehouse manarer to outside sales to office manager then to office manager which morphed into part owner of that branch. What it takes is knowing what you have and dealing with it and not let it tell you what you can and can not do. At the last job I had when I started it it took 3 hours each way to get to and from work. When I was let go during the last recession it only took an hour and 15 minutes each way. As for seizures and work... My employers either took me or didn't. I never held back any information about my seizures and the time I might be in them. By informing them I had the project managers watching me and learing how they wanted things done I moved up the ladder. Went from sales to customer service to executive appeals officer in a small department of AT&T,,,, Dann in order to do things I took my seizures out of the options. If I had one I had one. I went on as if things hadn't happened. I did it in school and at work. I would rather live my life fully rather then let my epilepsy and seizures control what I do and Where I go. As for triggers___ there are lists of them on thsi site. But mot everybody get those triggers. I have one which isn't listed but most neurologists know it can be a trigger. Getting too hot too fast. So you see I left the best job I ever wanted because I would have seizures arround ovens and flat top stoves and fryers. I do hope this helps Joe