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What do you think?

Wed, 10/18/2006 - 04:25
I got this article out of my local paper yesterday. Click on the attachment to read or copy and paste the link. http://www.yorkpress.co.uk/search/display.var.971921.0.our_report_on_a_campaign_to_help_women_with_epilepsy_live_normal_lives.php and while I think that it's great news for both the women involved the piece itself is very lightweight and very lacking in details and hard facts. What were their meds? What were the alternative therapies used? These were type of questions I found myself asking. Sure it's a nice little human interest story but I think all some of it did was reinforce stereotypes of people with E. Sure it's great that the person at the end has been seizure free for 3 and a half years but do you think it's wise to think that she is free from Epilepsy. I've been seizure free about the same length of time but certainly wouldn't think that I was ''cured''. The doctor mentioned actually specialises in women and Epilepsy and has co-written several books on the subject. I guess it was the fact that so many of the actual facts and real issues that really matter to people with E got brushed to one side was why it got my goat. Have a look and tell me what you think.

Comments

Re: What do you think?

Submitted by fzMousie on Wed, 2006-10-18 - 07:07
I think the person at the end of the article is in for a rude awakening if she thinks she is "cured". That aside, the rest of the article was interesting. I liked how the first woman they focused on took charge of her situation. Yoga and meditation IN ADDITION TO her medication. She recognized that she needed her medication, but also took additional steps to fill in the gaps. I'm not sure it reinforces or even says anything as much as it is a snapshot of two individuals and how they responded to their epilepsy.

Interestingly article, but

Submitted by GodivaGirl on Wed, 2006-10-18 - 09:12
Interestingly article, but there are some parts I do take offense to as a female 32, that grew up epileptic. Why would they publish something like this: "Linda says epilepsy is a disease you have to live with, but its seriousness can alter at certain stages of your life. For women, this means taking special care at puberty, with family planning and through the menopause." Personally, I'm just starting to get people to recognize that I have a seizure disorder and not a DISEASE I'm forced to live with!! I was diagnosed with it, I deal with it and move on. Sure it is something that life has to work around, but every woman's life changes at puberty, and every friend of mine (non-epileptic) too precautions - i.e. taking folic acid, reducing the work schedule, etc. as they planned to have kids, there's just extra when you have a seizure disorder (high risk OBGYN, etc). And well, menopause - not there yet, but I'd expect the same as when "curse week" as my boyfriend calls it kicks in. That comment offends me!! Also, I was birth control pills for a bit - they thought my cycle was triggering seizures. Still may be a cause, but being on the pill really did nothing, so since I have an IUD anyway, I dropped that strategy. Who knows, may work for some, but not me. It's a strategy. As my neuro says seizure mgmt often times is trial & error A lot of what's in this applies - epileptic or not - My family GP is a moron & tried to put me back on tri-cyclin even though it made me sick, then put me on Alyesse even though it was meant for 16 yr olds - took 5 kinds of the pill to get it right! Most of my friends went through the similar experiences (non-epileptic of course) & my friends with kids go through those tough calls of to breast feed or not, it's a choice & seizures are not the only impact. A great friend of mine recently almost died giving birth to a now 2 mth old, so they told her they prefered she didn't, but her choice has been to nurse. As far as alternative methods go - I know I zoom in on finding triggers & managing them (i.e. aspartame, stress, routine changes). I also have joined a gym to help relieve stress. Not Yoga, but BodyPump (weights class) and BodyJam both help me! I still know I need my seizure meds, but stress counsellors and a gym help. I stick to my meds and controlling the triggers since I think that's the best approach for me, but I do know people who have been successful in managing things with homeopathic remedies, but then every case is different. After all, there has to be a reason that in Ontario, you can apply for legal level 2 on pot for seizures. They must see some medical purpose for "alternatives" ~ EC

..... I missed that bit

Submitted by fzMousie on Wed, 2006-10-18 - 09:52
..... I missed that bit about "epilepsy is a disease". That changes my entire outlook on the article. It's a disorder, not a disease. Calling it a disease kinda implies that it can be caught. :P

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