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So many questions?

Sun, 08/16/2015 - 18:26

 

Hi

I posted a short while back after a first seizure and had a 2nd one a few days ago during the night when I was struggling to sleep. Woke up to bitten tongue, sore muscles, fuzziness, headache and a lovely cut on my forehead from where I'd scrapped it on the corner of my bedside draws. I guess my first question is would it be worth talking with my neurologist over some unusual things that happened during some nights between the last one and this one.

A few times I've woken up suddenly in the night with a sore tongue (like I'd been scrapping my teeth across it), one time in the morning with a slight bite to one cheek and feeling like I'd pulled the backs of my thigh muscles and once bolting upright and not being able to move my left arm at all (not like cramp but totally unresponsive) before promptly falling back to sleep. Just weird random things that I assumed was signs of stress but now I'm thinking might be prudent to mention. I guess I'm expecting more 'overt' signs like a mashed up tongue and being knackered/away with the fairies.

Also has anyone ever gotten a seizure after being unwell? I was sick with a really bad stomach that day and after a sensation of rising nausea (had it before) didn't feel with it afterwards, slept all the way back from work and struggled to string a coherent sentence together and get food shopping done in the supermarket. And my final question does anyone get changing auras or warnings with their bigger seizures? I kept smelling cigarette smoke and thought someone was chain smoking in the street outside but no one else could smell it. Just before I seized I was listening to music trying to relax and heard another song playing that was crystal clear, even after I ripped my headphones out. 

Sorry for all the questions, it's all so new and scary, I really feel like I'm going crazy!!

Thanks 

 

 

 

Comments

would it be worth talking

Submitted by just_joe on Mon, 2015-08-17 - 16:31
would it be worth talking with my neurologist over some unusual things that happened during some nights between the last one and this one.  Yes those episodes could be nocturnal seizures.Most of the things mentions in the next paragraph can land in nocturnal seizures too.Also has anyone ever gotten a seizure after being unwell?  Each persons aura is different they may have some or many of the same things in them but somewhere it is different. They are generally warning of a stronger seizure coming on.Relax mushroom it can be scary and yes bother you until you get used to what is happening by learning more. It took me yearsAs for the questions I had them too but back then there were no forums. With forums you can get answers. Some will answer with what they have learned in their research because they have family members with epilepsy. Then there are others like me who want to help because we know what we have gone thru and it  wasn't easy.I hope this helpsJoe

Seizures are pretty frequent

Submitted by Anonymous on Thu, 2015-08-20 - 12:57
Seizures are pretty frequent for me during and or after being unwell. Lack of sleep or food. Chewing of my tongue and cheek are not often but take 2-3 weeks to heal. Auras have changed over the years and the latest, starting since the GM a year ago where I fell and fractured my skull damaging hearing in my right ear and destroying my sense of smell, is smell. Whenever I begin to smell something I am almost guaranteed to have a seizure within 5 minutes or less, sometimes waiting up to an hour. The smell has no connection to what is around me but I have no specific scent each time.

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