Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
new to this forum and in the UK. absent seizures ?
Mon, 07/21/2014 - 14:56Hi all .. well i am new here although i have been epileptic since 2007. my epilepsey was due to me having to under go life saving heart surgery .. but during the surgery they think i had either a blood clot go to my brain or i was strved of oxygen. the epilessy was finaly controlled with epilim and keppra. BUT i think im now having absent seizures . both my partner and my family have seen them, apparently i go very quiet or i mubble and smack my lips . then eventually i snap out of them .. normally its about 30 seconds ,but can be a couple of minuets. but i also get "funny turns" that i am aware that im having. i get some double vision and or the shakes down my arms . the abcent seizures totally wipe me out ! all i want to do is sleep .. thats how i know i have had one when no one is around to tell me that i have had one ! is anyone else having turns like these ? i know my epilesy was due to my heart opp . and it was controlled .. but its not now .. and im worried as the implications on my job and life are massive again !
HiAbsence seizures are blips
Submitted by just_joe on Mon, 2014-07-21 - 15:53
HiAbsence seizures are blips in time. They are short and are thougth of as day dreams. What you may be having ar e partial seizures.They can be longer and yes mumbling can be a form is some of them. The longer a seizure is the more energy is used up which is why you are tired. If you are on medication as you posted your dosage may need to be adjusted. Since yo udidn't post the last time it was changed. If you have gained weight or your body changed then that would be another reason. Also know that if medications are to be taken bi daily then those dosages need to be 12 hours apart. Any hours over those 12 hours could cause breakthru seizures. So see your neurologist and discuss this issue with him. He may want to adjust your medications or even change them to another med. I do hope you get this issue resolved and yo uget your seizures controlled Joe