MY SEIZURES ARE GETTING SCARY TO ME

I can totally relate to what you're going through. The first thing I want to say is that you're probably not far enough along with your meds to get your seizures under control. The second thing is to call your doctor and tell him/her EXACTLY what has been going on so that they can either UP your meds or possibly introduce something new into the "mix" already. Sounds like you need something more. I've done some of the same things you're going through, especially early on in my diagnosis nearly a year ago. I haven't talked to anyone else who smelled the burning smell, but I still smell that once in awhile even now. I get convinced that I've left the stove on. Maybe it's partly psychological. I don't know. But do call your doctor. Don't wait in fear. Let the medical professionals do their job. Your seizures are out of control and they need to be under control for you to get on the path to healing. That may mean going on something really heavy duty for a short while or even going into the hospital over the weekend. Don't resist that. I had to do it and it really helped get me on track. The first 2-3 times I wet myself I was at work!! Imagine my embarrament. But it's something we have to deal with. We lose control of ourselves and if adults can't understand that, then we need to educate them on it. It sounds like you've been very recently diagnosed, however, so you don't need to worry about all that right now. Your job is to get better. That's all. Nothing more. It is scary. You have a right to be afraid. You would have to be a fool NOT to be scared when your body suddenly betrays you like this! Take a deep breath and look at it that way and know that there are others of us just like you dealing with the same fears (or at least similar) and we are just as scared when these things happen to us. But there is safety in numbers, so we reach out to each others. Someone who can say, "I understand," not because they feel sorry for you, but because we've been there, done that...and are STILL doing it...day to day. Stay away from stairs and windows, stoves and knives and any other harmful things you can think of until your wife can get home, ok? Safety first, always. Take heart. Things WILL GET BETTER...I PROMISE.

Jana33, First, start keeping a diary of your seizures and what you are experiencing. Make sure you note your meds. To yours Dr. of the smells which I believe are auras. Some people have auras before or after seizures. You wrote you you wet yourself, some people with epilepsy wet themselves. make sure you do research on all epilepsy. Have your Dr. tell you what type of epilepsy you have. As far as your headache, tell your Dr. My neurologist put me on immotrex dur to the fact I would have headaches for 2-3 days. When I was first put on that I told everyone that was the drug because it stopped my headaches. If you are new to epilpesy, ask your Dr. questions, research it and DO NOT BE ASHAMED OF HAVING EPILPESY. NaBox

I HAVE NOT BEEN ON FOR A WHILE AND I WILL LIKE TO THANK YOU BOTH FOR THOSE KUND WORDS AND YES I HAVE BEEN DIAGNOIS ON 3/6/06 AND I'M TRYING HARD TO BE COOL. IT'S JUST SCARE ME SOMETIMES. I KNOW I HAVE TO GIVE IT TIME AND I WILL. I HAVE WROTE DOWN EVERYTHING FOR THE DOCTOR TO SEE WHEN I SEE IN A MONTH. I WILL KEEP THE FAITH AND LET MY BODY HEAL ITSELF.