Community Forum

Living with epilepsy

I was diagnosed with epilepsy 15yrs ago after having 2 grand mal seizures. Luckily i have been seizure free with the help of seizure meds. This week at my neurologist, i asked him if i'd always be on carbatrol and he said since my eeg still shows seizure activity then yes i will always be on it. On one hand i am very grateful but sad at the same time. I guess part me kindof hoped without realizing it that i thought it would go away. I feel the past 10yrs i haven't done much. I have a good relationship, family, been at the same job the past 8yrs but other than that what do i have or i should say what have i done. I feel like ive played it safe and havent done anything worthy. If im going to be epileptic for the rest of my life is this what my life will be. I dont know if this makes sense but its something going through my mind

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The mission of the Epilepsy Foundation is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives.

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