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life after seizures

Thu, 02/05/2015 - 22:16

Hello to everyone who is fighting siezures, the hurt and pain they bring.

I am new to this site and in reading some of the postings, I totally know what each one of you are going thru, I am a former EPILIPSY patient. The first thing I would like to discuss is DON'T QUESTION YOURSELF OR GOD. YOU DID NOT DO ANYTHING WRONG AND GOD WILL NOT PUT MORE ON YOU THAN YOU CAN HANDLE. YOU HAVE TO BELIEVE AND KNOW THAT HE WILL TAKE CARE OF YOU.

I STARTED HAVING SEIZURES WHEN I WAS 6 MONTHS OLD TO THE AGE OF FOUR. I WENT 14 YEARS WITHOUT ONE AND NO MEDICATIONS, STARTED HAVING THEM AGAIN  WHEN I WAS EIGHTEEN, I STARTED MY CAREER AND THOUGHT I HAD IT MADE, THEN IT WAS ALL TAKEN AWAY, WHEN AN EMPLOYER LET ME GO BECAUSE OF THEM, NOW THEY DIDN'T TELL IT WAS BECAUSE OF THEM BUT I KNOW IT WAS. I LOST ALL OF MY CONFIDENCE, PULLED AWAY FROM FAMILY AND FREINDS, AND WORRIED ABOUT MY JOB EVERYDAY AFTER THAT. DOCTORS WANTED TO PERFORM SURGERY IN THE EARLY 90'S, PRAYING TO GOD, WHAT DO I DO, I DID NOT RECEIVED AN ANSWER FOR MANY YEARS, BUT IN 99 I DID, I MARRIED MY WIFE AND TWO BEAUTIFL CHILDREN. WE WERE MARRIED FOR  LESS THAN A YEAR WHEN I GOT MY ANSWER. I STARTED ALL OF THE TESTING MRI'S, PET SCAN, WADA TEST, PYCH TEST, VIDEO MONTORING AND MANY MORE. I WAS A CANIDATE FOR SURGERY, IN FEB 2001, I HAD MY RIGHT TEMPORAL LOBE AND HEPACRAMPUS  REMOVED, I AM NOW 14 YEARS SEIZURE FREE AND HAVE BEEN OFF ALL MEDS FOR OVER SIX YEARS. I AM NOT SAYING SURGERY IS YOUR ANSWER, I TELLING YOU, TO LET THE PEOPLE WHO LOVE YOU, HELP YOU, DON'T BE ALONE, BLAME YOURSELF OR GOD, PRAY TO HIM AND LIVE FOR HIM,  HE WILL GIVE THE ANSWER YOU ARE SEEKING. HE WILL ALWAYS LOVE US, NO MATTER WHAT.

MAY GOD BE WITH YOU, LET HIM HELP YOU THROUGH YOUR JOURNEY AND KNOW HE WILL NEVER LEAVE YOU.

Comments

Please note the 'god doesn't

Submitted by Anonymous on Fri, 2015-02-06 - 01:05
Please note the 'god doesn't give you more than you can handle' and related sayings, tends to make lists of the annoying things people can say to parents of kids facing exceptional special needs for good reasons. It isn't in the bible in such a form (dealing with temptation is not the same). Also not any better when written in all caps. I'm sure you have the best of intentions.

I love it written it caps! It

Submitted by Anonymous on Fri, 2015-02-06 - 09:18
I love it written it caps! It is giving all the honor and glory to HIM! I was like you too.  I couldn't understand how my being raised in a strong Christian family, went to church, paid my tithes could have a brain injury happen to me! All kinds of seizures happen to me. Lose my job and place on Social Security so quickly happen to me BUT GOD is a good GOD and ,lee in tn, I will speak it to anyone.  It wasn't brain surgeries (cause seizures continued), it wasn't meds (took all available) it was my FAITH in GOD that at some point i was going to be healed.  That doesn't mean that GOD does not ALLOW healing to come through meds and physicians and whatever if you believe and i will SPEAK it forever! And if CAPS brings attention to others of what GOD can do and HE puts it in your heart to SPEAK, SO BE IT! grace and peace. 

Your comment is awaiting

Submitted by Anonymous on Fri, 2015-02-06 - 09:22
Your comment is awaiting moderationI love it written it caps! It is giving all the honor and glory to HIM! I was like you too.  I couldn't understand how my being raised in a strong Christian family, went to church, paid my tithes could have a brain injury happen to me! All kinds of seizures happen to me. Lose my job and place on Social Security so quickly happen to me BUT GOD is a good GOD and ,lee in tn, I will speak it to anyone.  It wasn't brain surgeries (cause seizures continued), it wasn't meds (took all available) it was my FAITH in GOD that at some point i was going to be healed.  That doesn't mean that GOD does not ALLOW healing to come through meds and physicians and whatever if you believe and i will SPEAK it forever! And if CAPS brings attention to others of what GOD can do and HE puts it in your heart to SPEAK, SO BE IT! grace and peace

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