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Frustrated to TEARS with my Husband and The DOCTORS!!!

Sat, 03/04/2006 - 19:39
Hi! I am not new here but not well known either. I come here from time to time because I am very busy trying to take care of my children,the house,my husband and then myself. I feel like when I got sick and got put on Social Security Disability my husband took it as his clue that he gets a free paid stay at home mom. I use to work full time and take care of the house,the children,my husband,my self and I loved it. However,in 2003 I had a malignant brain tumor and since the surgery to remove the tumor my husband and I have lost everything. Our home our cars and we have since started over. We have moved to a beautiful new rent home in a brand new town with our two kids and we are well on our way to working our way back. However,I feel further from my husband than I ever have. He is very mean and cold to me. Very heartless. He works non-stop even if he dosen't have to be at work. We have lived here since Dec.29,2005 and have yet to do anything as a family. I haven't gotten out of the house once yet except to go to the doctors. He doesn't let me keep track of any money. He tells me school pictures are pointless and a waste of money something that has always been a must for me to get for our children. He wouldn't let me get the kids new coats for the winter when our son didn't have one. Kept telling me winter was almost over. It has been just awful. Now,I don't know if I am in a major depression or if it is the seizure meds but I have dropped down from 216lbs since May 2005 to 146lbs as of last Monday. Recently,the most drastic weight loss going from 170lbs to 146lbs since December. I am on Topamax which was started in May of 05. That may be the culprit. My normal weight has been 170lbs and in highschool 130lbs. Also,since moving up here I got a severe sinus infection no big deal but i haven't been able to kick it completly. I go from a standing up position from sitting down or walk up a flight of stairs and I literally want to pass out from exhaustion. I had an abnormal EKG last week and my PCP said you need to get to a cardiologist within a week. Which totally frustrtates me because I don't feel like this PCP knows me well enough to care about my health. I am not liking my new neurologist. I have these two knots behind my ear that have been there since January that I can't get anyone to pay attention too. I just feel like I am completly losing it here!!!! I am taking 800mgTopamax,600mg Carbatrol,20mg Lexapro HELP!!!! Thanks~~ Amanda

Comments

Re: Frustrated to TEARS with my Husband and The DOCTORS!!!

Submitted by rootbeergirl16 on Sat, 2006-03-04 - 20:38
Dear Amanda, I sit here and I read your story and how i wish I had som wonderful words of wisdom to offer you. Your story touch my heart as I read it then I got down to your login name (trulyblessed) and I thought that this must be a person that has a amazing ability to look on the brighter side even in the darkness. So if my asumption is right then you will find the power to find the end of the bumpy road that you are on. I am wishing you the best. Pam

Re: Frustrated to TEARS with my Husband and The DOCTORS!!!

Submitted by My3Dogs on Sat, 2006-03-04 - 21:20
Amanda, I am sorry things are so terrible right now. I bet you are right about the Topamax BUT wouldn't it be nice to feel comfortable with your PCP and/or your neuro and have them tell you that? Could the knots behind your ears be swollen lymph glands from the infection you were fighting off? Once again....would be nice have a PCP who you feel knows you rell enough to care about your health. Do you think that will come with time? Or should you search for another? Do you have any friends in your new town? -Wendy

Re: Re: Frustrated to TEARS with my Husband and The DOCTORS!!!

Submitted by emmy on Tue, 2006-03-07 - 07:47
Amanda, Pam and Wendy summed up beautifully what i was thinking. You do sound a bit overwhelmed right now. How i can relate! I have learned that my intense feelings do fade, but they can also be used for good...like being a tiger about finding a doctor that will listen and understand! I was misdiagnosed more times than i can count, each time bringing fustration, anger and hopelessness. I have learned to refuse to bow to the white coat. I know my self and i know when something is wrong. I had brain injury 6 years ago, now have seizures(not controlled)and memory problems. The same anger, fustration that makes you feel awful, can propel you forward into making needed changes and or to find the help you need to get back into control of what you CAN control. I know it is a slow process, but celebrating even tiny victories is like having a private party just for yourself! What tiny thing can you do today, to help you remember who you really are?

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