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Long story here. About 6 years ago at 18 years old, I started getting visual disturbances for a couple minutes at a time. I would see bright flashing colorful circles in my peripheral field accompanied by ringing in my ears. I went to see a neuro who told me my EEG was abnormal and I was put on Keppra. A few weeks after starting Keppra, I had my first Grand Mal seizure while at work. I felt a hot sensation from my feet up, felt anxious and panicky, wanted to puke, got the lights and ringing in my ears and had a seizure. Luckily I was sitting down and a co-worker was around to help and I was taken to the hospital where I had another seizure. My EEG at the hospital that day was normal after the seizures occured.

I had another incident at work a few months later and ended up getting fired. Needless to say I went a year without driving, and on a lot of medication (switched from Keppra to Lamictal, got an awful rash, switched to Topamax) and I seemed to be getting better. I got married, moved away from home and was eventually weaned off my medication when I became unexpectedly pregnant.

I had been seixure free for about 2 years until a few months ago I was out eating dinner with my family and the strangest feeling came over me. I felt like I was dreaming almost, I was looking at people and couldnt respond, the room was spinning. I told my neuro and was put back on topamax. I have been fine until last night. I woke up yesterday morning with a migraine and had felt out of sorts all day. I was also very irritable and tired (idon't know if this is related) I was at the store with my husband and son and suddenly I felt the hot sensation from my feet up, anxiety, and sweating but this time I felt this for a few minutes before I got the ringing and lights in my vision. My husband sad my eyes were fluttering and I was unresponsive for a few seconds. It took a couple of minutes for my vision to return and I was slightly confused after the episode, however today it all seems so foggy in my memory almost like it never happened.

Has anyone had an experience similar to mine? I am so afraid that these small seizures could turn into a Grand Mal with my son around and my husband at work. We are trying to get my mother in law to come and stay with me so that I am not alone since I am a stay at home mom and my husband is very worried. I am very frustrated after being okay for such a long period of time, it is hard to accept that this could be happening to me all over again.

Comments

What you are experiancing

Submitted by Anonymous on Tue, 2014-05-13 - 19:39

What you are experiancing could be different kinds of seizures. I also know what it is like to go for a period of time without a seizure since I went 3+ years without one. Some of what you posted could be auras (the flashing lights and some of the others) They are seizures in themselves. However they are also warnings to some people who have had grand mal seizures. EEG was abnormal and I was put on Keppra My EEG at the hospital that day was normal after the seizures occured As for Keppra and having a seizure how long had you been on it and what was the dosage. Generally a neurologist will start the dosage lower then needed so a persons body can get used to it. He will then raise the dosage a little at a time. During that time a person can have seizures which would make a difference in the dosage. If he started at a high dosage then you could have been getting too much medication. Understand that a medications created to stop seizures can also cause them. Also too much medication is just as bad as not enough. Keppra is the best medication I have ever used in the 50+ years I have been living and dealing with epilepsy. Both of the other medications you have taken and are taking also work. I know been there done that. In other words I have used them also and they did help control my seizures but I wanted better control. You are still young. I was diagnosedat a earlier age tehn you and I know what it is like trying to do some things knowing I can do them but being stopped becasue I have epilepsy didn't stop me. I have gone thru many things and yes I know it might be hard on many people. I also know that if a person gets the right neurologist and works with him they can get better control of their seizures. As for grand mal seizures I have had some. I have also had focal seizures which can and have generalized and gone into a convulsion. Once in them they look like grand mal seizures but are deffinately different since in a grand mal the person having it generally loses conciousness. In my focal motor seizures I was aware of everything going on around me and knew what was happening. I had no control of anything while in those seizures. I can also state I have not had a convulsive seizure since 1970 and the seizures I do have many people do not know about them since they last seconds and getting back to normal is also seconds. Most of that is due to the keppra. Small seizures are just that small seizure AKA petite mal. What I would suggest you do is research and find epilepsy 101 it is on this site and read. There is alot of informationabout the types of epilepsy. with each type there are also different kinds of seizures one could have. Also call your neurologist and ask him what type of epilepsy you have since he saw the EEG. If he gives you one type ask if you have more then 1 type os epilepsy. Yes a person can have more then 1 type of epilepsy. My diagnosis was done back in the early 1960's before there were types. I have grand aml, petite mal and focal motor epilepsy. Basically the worst the slightest and many inbetween them. I am so afraid that these small seizures could turn into a Grand Mal There is apossiability you not have a seizure again but then you could. Live each day like it is your last and love your husband and child what ever happens happens. It is all in Gods hands. I hope this helps and you get seizure free Joe

What you are experiancing could be different kinds of seizures. I also know what it is like to go for a period of time without a seizure since I went 3+ years without one. Some of what you posted could be auras (the flashing lights and some of the others) They are seizures in themselves. However they are also warnings to some people who have had grand mal seizures. EEG was abnormal and I was put on Keppra  My EEG at the hospital that day was normal after the seizures occured     As for Keppra and having a seizure how long had you been on it and what was the dosage. Generally a neurologist will start the dosage lower then needed so a persons body can get used to it. He will then raise the dosage a little at a time. During that time a person can have seizures which would make a difference in the dosage. If he started at a high dosage then you could have been getting too much medication. Understand that a medications created to stop seizures can also cause them. Also too much medication is just as bad as not enough. Keppra is the best medication I have ever used in the 50+ years I have been living and dealing with epilepsy. Both of the other medications you have taken and are taking also work. I know been there done that. In other words I have used them also and they did help control my seizures but I wanted better control. You are still young. I was diagnosedat a earlier age tehn you and I know what it is like trying to do some things knowing I can do them but being stopped becasue I have epilepsy didn't stop me. I have gone thru many things and yes I know it might be hard on many people. I also know that if a person gets the right neurologist and works with him they can get better control of their seizures. As for grand mal seizures I have had some. I have also had focal seizures which can and have generalized and gone into a convulsion. Once in them they look like grand mal seizures but are deffinately different since in a grand mal the person having it generally loses conciousness. In my focal motor seizures I was aware of everything going on around me and knew what was happening. I had no control of anything while in those seizures. I can also state I have not had a convulsive seizure since 1970 and the seizures I do have many people do not know about them since they last seconds and getting back to normal is also seconds. Most of that is due to the keppra. Small seizures are just that small seizure AKA petite mal. What I would suggest you do is research and find epilepsy 101 it is on this site and read. There is alot of informationabout the types of epilepsy. with each type there are also different kinds of seizures one could have. Also call your neurologist and ask him what type of epilepsy you have since he saw the EEG. If he gives you one type ask if you have more then 1 type os epilepsy. Yes a person can have more then 1 type of epilepsy. My diagnosis was done back in the early 1960's before there were types. I have grand aml, petite mal and focal motor epilepsy. Basically the worst  the slightest and many inbetween them.  I am so afraid that these small seizures could turn into a Grand Mal    There is apossiability you not have a seizure again but then you could. Live each day like it is your last and love your husband and child what ever happens happens. It is all in Gods hands. I hope this helps and you get seizure free Joe

What you are experiancing could be different kinds of seizures. I also know what it is like to go for a period of time without a seizure since I went 3+ years without one. Some of what you posted could be auras (the flashing lights and some of the others) They are seizures in themselves. However they are also warnings to some people who have had grand mal seizures. EEG was abnormal and I was put on Keppra My EEG at the hospital that day was normal after the seizures occured As for Keppra and having a seizure how long had you been on it and what was the dosage. Generally a neurologist will start the dosage lower then needed so a persons body can get used to it. He will then raise the dosage a little at a time. During that time a person can have seizures which would make a difference in the dosage. If he started at a high dosage then you could have been getting too much medication. Understand that a medications created to stop seizures can also cause them. Also too much medication is just as bad as not enough. Keppra is the best medication I have ever used in the 50+ years I have been living and dealing with epilepsy. Both of the other medications you have taken and are taking also work. I know been there done that. In other words I have used them also and they did help control my seizures but I wanted better control. You are still young. I was diagnosedat a earlier age tehn you and I know what it is like trying to do some things knowing I can do them but being stopped becasue I have epilepsy didn't stop me. I have gone thru many things and yes I know it might be hard on many people. I also know that if a person gets the right neurologist and works with him they can get better control of their seizures. As for grand mal seizures I have had some. I have also had focal seizures which can and have generalized and gone into a convulsion. Once in them they look like grand mal seizures but are deffinately different since in a grand mal the person having it generally loses conciousness. In my focal motor seizures I was aware of everything going on around me and knew what was happening. I had no control of anything while in those seizures. I can also state I have not had a convulsive seizure since 1970 and the seizures I do have many people do not know about them since they last seconds and getting back to normal is also seconds. Most of that is due to the keppra. Small seizures are just that small seizure AKA petite mal. What I would suggest you do is research and find epilepsy 101 it is on this site and read. There is alot of informationabout the types of epilepsy. with each type there are also different kinds of seizures one could have. Also call your neurologist and ask him what type of epilepsy you have since he saw the EEG. If he gives you one type ask if you have more then 1 type os epilepsy. Yes a person can have more then 1 type of epilepsy. My diagnosis was done back in the early 1960's before there were types. I have grand aml, petite mal and focal motor epilepsy. Basically the worst the slightest and many inbetween them. I am so afraid that these small seizures could turn into a Grand Mal There is apossiability you not have a seizure again but then you could. Live each day like it is your last and love your husband and child what ever happens happens. It is all in Gods hands. I hope this helps and you get seizure free Joe

Eplipesy "Relapse"

Comments

What you are experiancing

Submitted by Anonymous on Tue, 2014-05-13 - 19:39

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