Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Epilepsy Project
Mon, 06/13/2016 - 20:59Hi all, I am a masters student in Journalism and I have a final thesis to do this fall, which is a long-form narrative story. I was diagnosed with epilepsy in 2008 and would love to do something on the topic. It has to be a story, not written like a research paper. I am looking to talk to people who might be willing to share their stories. I am trying to get into a surgery room to see an epilepsy surgery take place and other areas I would like to explore are the discrimination/stima around epilepsy.
If anyone is willing to reach out and share a story it would be greaty appreciated. The reason I want to do my final thesis project on this is to in someway make a difference. Our project is written for the intention of being published, which is the ultimate goal.
Thanks very much
My son was diagnosed with a
Submitted by Sukhihontu on Tue, 2016-06-14 - 21:24
My son was diagnosed with a really rare epilepsy disorder called FIRES. Here's his story: https://youtu.be/FuNn5x0UVMQIf you're interested feel free to contact me me at Sukhihontuphoto@gmail.com