Temporal lobe epilepsy, dealing with it, tips and suggestions.

Heya!

Seems like a good place to look for the much needed advice or hear an insightful story:)

My partner's had epilepsy ever since he was 16 y/o (he's 38 now). He has tonic clonic sleep seizures, plus it was narrowed down even more this past year, i.e., he's got temporal lobe epilepsy. He is currently on 3 different epilepsy medications - Keppra, Zonegran (Zonisamide) and Fycompa (Perampanel). Due to panic attacks he started having after the perampanel withdrawals and the whole big mess that came with it, he is now on Diazepam (Vaium) too. He is currently going down a lenghtly road to a possible surgery in the future, however, the doctors are struggling to pinpoint where the misfire is happening in his brain as it's in such a tricky place. 

Now the main issue is that he never had so many seizures before. He would go through 2-3 seizures a year but after moving to Norway last year, due to new environment, stress, not eating enough, he started having them every other week, and he'd have 2 seizures in 24hrs. He's a big guy, so when a seizure hits, it hits him hard and he has a veeeery long recovery period. And as you can guess, when he repeatedly has seizures, he never has a chance to recover properly. At the end of the last year his neurologist put him on Perampanel and took away Lemotrigin. he went down in seizures and things started to look up. He has been in and out of epilepsy clinic due to various test etc. He is working and things seem to be going ok. Now the new issue is, he is definitely unable to cope with stress and stressful situations in general. He works himself up and due to the build up, he will have a fit again. Two days ago he had double fit again. He is scared that the doctors will not be able to offer him surgery due to them not being able to find where it starts. This creates more stress, more worries and the result of it all is predictable. 

Now to what brings me here. I'd love to hear stories and maybe get some tips on how to help him cope with stress and even him out a little as he gets wound up very fast (which was not the issue when he was on Lamotrigin). Is there anyone who has the same type of epilepsy on here or a family member etc. who is going through this too? Or maybe someone who had a successful temporal lobe epilepsy surgery etc?

Thanks a bunch,

Nessa