Sleep Walking

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I have been reading up about Medial Temporal Lobe Epilepsy, and think I match up with a lot of the symptoms (deja vu, g.i. issues, memory/mood issues). I have been reading about sleepwalking/sleep disturbances and am wondering if the sleep walking I have experienced is related. My sleepwalking experience is different than most. I will half wake up in the middle of the night, but I am still in my dream. The best I can describe is with an example: on nights after marching band camp, I would do my half wake up thing and partially think that I was on the field marching, and partial realize that I was laying in my bed. I would feel embarassed for a while for sleeping in my bed and eventually get up. Something would usually wake me up, either I would hear a noise or see my reflection in my mirror. Sometimes I would realize I was having a sleep walking episode and be able to talk myself out of the hallucenations and go back to sleep. Most frequently, they happen when I am sleeping somewhere that is not my room (stay away camps, sleepovers, vacations), or after being really wound up and really tired (late night with marching band). If I was sharing a room with someone, I have asked them to turn on a light, they ask me if I'm sleepwalking, I answer foggily, and go back to sleep. I have woken up the next morning, realized I have on different clothes, and then remember waking up in the middle of the night and frantically changing my clothes. There have been a few, but rare episodes of more normal sleepwalking that I my mom would tell me I get out of my bed, walk around, say weird things to her, and then she convinces me to go back to bed.

So basically, I am wondering if anyone else has had similar experiences, and if this could be linked to seisures. I am 20, and the earliest I remember experiencing the more strange sleepwalking is when I was 11. I had experiences with deja vu when I was 12, and then not again until this past semester, and I had g.i. issues in high school.

Comments

I can understand some of the

Submitted by bleu623 on Sun, 2018-12-02 - 15:06

I can understand some of the things you guys are talking about. I'm 38 and I have been diagnosed with epilepsy since I was 17, although they think it might have started way before that because I had multiple syncopal pisodes prior to that. My seizures have changed many times thru the years and I've gone through so many medications that I've stopped counting at this point. My seizures have gotten to a point that they only occur while I'm sleeping. I sleepwalk and when I'm having testing done I rarely have any of them show up on the testing, but the type of sleepwalking and the things that occur scare me and my family. One time we were down the shore and I had left the hotel room and I went down the stairs and I had gone to the street and I was found 3 hotels down standing in front of the same room number that I was in but at completely different hotel. We were along the shoreline and while the cops, my husband, sons, and friends were looking for me they had to see if I was in the ocean and drowned. They looked all over the town and shore and to find that I was at a completely different hotel down there meant that I had left the room we were in , walked down the staircase, and walked down the street to 3 hotels down all while I was sleeping. Along with that I had dirt all over me and they found that I had rolled underneath the car during all of this experience. However, the only positive aspect I can find with this is that I do not have the seizures while I'm awake. But it still is scary. I wake up in different rooms in my house. I do become violent and hit, my husband often holds me down. I have 2 young children. I do get scared about walking out of the house or finding things dangerous to do do and doing something that can hurt my family or even myself. I wake up and I don't know where I am and sometimes I don't know what has happened. I just know I'm not supposed to be where I am at that point. My husband has taken videos and there's things that I do, like rearrange photos or go to a bed that's not mine and then that's where I lie and convulse. I wish there was something I could do to stop this but the doctor still say, "What can we do" or suggest surgeru or another medication. My seizures started on the left temporal lobe and have moved along the entire posterior side of my brain and when they suggest surgery I say no because as it's moving along through these years why would I let them perform surgery when it could keep spreading along my brain.I really do feel a lot of sympathy for everybody on this forum. Alot of people do not understand how scary this is and how much it affects your life

I can understand some of the things you guys are talking about. I'm 38 and I have been diagnosed with epilepsy since I was 17,  although they think it might have started way before that because I had multiple syncopal pisodes prior to that.  My seizures have changed many times thru the years and I've gone through so many medications that I've stopped counting at this point. My seizures have gotten to a point that they only occur while I'm sleeping.  I sleepwalk and when I'm having testing done I rarely have any of them show up on the testing, but the type of sleepwalking and the things that occur scare me and my family. One time we were down the shore and I had left the hotel room and I went down the stairs and I had gone to the street and I was found 3 hotels down standing in front of the same room number that I was in but at  completely different hotel. We were along the shoreline and while the cops, my husband, sons, and friends were looking for me they had to see if I was in the ocean and drowned. They looked all over the town and shore and to find that I was at a completely different hotel down there meant that I had left the room we were in , walked down the staircase, and walked down the street to 3 hotels down all while I was sleeping. Along with that I had dirt all over me and they found that I had rolled underneath the car during all of this experience. However, the only positive aspect I can find with this is that I do not have the seizures while I'm awake. But it still is scary. I wake up in different rooms in my house. I do become violent and hit, my husband often holds me down.  I have 2 young children. I do get scared about walking out of the house or finding things dangerous to do do and doing something that can hurt my family or even myself. I wake up and I don't know where I am and sometimes I don't know what has happened. I just know I'm not supposed to be where I am at that point. My husband has taken videos and there's things that I do, like rearrange photos or go to a bed that's not mine and then that's where I lie and convulse.  I wish there was something I could do to stop this but the doctor still say, "What can we do" or suggest surgeru or another medication.  My seizures started on the left temporal lobe and have moved along the entire posterior side of my brain and when they suggest surgery I say no because as it's moving along through these years why would I let them perform surgery when it could keep spreading along my brain.I really do feel a lot of sympathy for everybody on this forum.  Alot of people do not understand how scary this is and how much it affects your life

I can understand some of the things you guys are talking about. I'm 38 and I have been diagnosed with epilepsy since I was 17, although they think it might have started way before that because I had multiple syncopal pisodes prior to that. My seizures have changed many times thru the years and I've gone through so many medications that I've stopped counting at this point. My seizures have gotten to a point that they only occur while I'm sleeping. I sleepwalk and when I'm having testing done I rarely have any of them show up on the testing, but the type of sleepwalking and the things that occur scare me and my family. One time we were down the shore and I had left the hotel room and I went down the stairs and I had gone to the street and I was found 3 hotels down standing in front of the same room number that I was in but at completely different hotel. We were along the shoreline and while the cops, my husband, sons, and friends were looking for me they had to see if I was in the ocean and drowned. They looked all over the town and shore and to find that I was at a completely different hotel down there meant that I had left the room we were in , walked down the staircase, and walked down the street to 3 hotels down all while I was sleeping. Along with that I had dirt all over me and they found that I had rolled underneath the car during all of this experience. However, the only positive aspect I can find with this is that I do not have the seizures while I'm awake. But it still is scary. I wake up in different rooms in my house. I do become violent and hit, my husband often holds me down. I have 2 young children. I do get scared about walking out of the house or finding things dangerous to do do and doing something that can hurt my family or even myself. I wake up and I don't know where I am and sometimes I don't know what has happened. I just know I'm not supposed to be where I am at that point. My husband has taken videos and there's things that I do, like rearrange photos or go to a bed that's not mine and then that's where I lie and convulse. I wish there was something I could do to stop this but the doctor still say, "What can we do" or suggest surgeru or another medication. My seizures started on the left temporal lobe and have moved along the entire posterior side of my brain and when they suggest surgery I say no because as it's moving along through these years why would I let them perform surgery when it could keep spreading along my brain.I really do feel a lot of sympathy for everybody on this forum. Alot of people do not understand how scary this is and how much it affects your life

Sleep Walking

Comments

I can understand some of the

Submitted by bleu623 on Sun, 2018-12-02 - 15:06

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