Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Jerks on awakening...
Sun, 10/16/2011 - 11:41Topic: Epilepsy.com Help
Re: Jerks on awakening...
Submitted by fringepod on Wed, 2012-11-14 - 14:59
Certainly possible--this is how it started for me and most usually before I have a big seizure, I will have jerks in the morning before it takes place--I feel really lucky for this as it serves as a warning for me to be safe, e.g. lay down, not go down stairs, etc. So many with epilepsy aren't so lucky to have these warnings!
I have had plenty of normal EEGs, and had a normal sleep-deprived EEG as well, but I very much have JME even though only a quarter of the EEGs came out showing issues (usually after hyperventilation) over the past 20 years since diagnosis at age 19. A large proportion of the seizures I have had in my life indeed have taken place when I didn't get enough sleep--your friend should be careful with that. Hopefully something else is the root cause, but it is defitely worth a sleep-deprived EEG--and my suggestion--although they may say you can get 2-3 hours of sleep in the middle of the night--issues are more likely provoked with NO sleep...
Best of luck!
Certainly possible--this is how it started for me and most usually before I have a big seizure, I will have jerks in the morning before it takes place--I feel really lucky for this as it serves as a warning for me to be safe, e.g. lay down, not go down stairs, etc. So many with epilepsy aren't so lucky to have these warnings!
I have had plenty of normal EEGs, and had a normal sleep-deprived EEG as well, but I very much have JME even though only a quarter of the EEGs came out showing issues (usually after hyperventilation) over the past 20 years since diagnosis at age 19. A large proportion of the seizures I have had in my life indeed have taken place when I didn't get enough sleep--your friend should be careful with that. Hopefully something else is the root cause, but it is defitely worth a sleep-deprived EEG--and my suggestion--although they may say you can get 2-3 hours of sleep in the middle of the night--issues are more likely provoked with NO sleep...
Best of luck!