First time seizure

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Hi, I had minor day surgery, I had a so called seizure (no proof) while I was in recovery room, they couldn't awaken me and I had to be resuscitated in the intensive care unit and then a prolonged hospital stay because of this. I had an EEG and many other tests and scans straight after the seizure and they were normal. I was put on keppra so strong I couldn't walk and had slurred speech, they halved my dose soon after. Fast forward 3 months and I had an EEG is was abnormal so stayed on keppra till the 6 month mark with no further seizures and I demanded to come off keppra - it seemed they were trying to diagnose me for something that I didn't have. Came off keppra no issues and just had a follow up EEG which was abnormal again but less frequent spikes etc. I was told to stay off keppra and the results was this "The EEG findings are unusual and are of uncertain clinical significance" what does this mean?? The whole ideal has been so weird, no answers or anything to say what happened and why, no professor can tell me!! I guess I will just continue to live in the grey patch and see what happens next. I have never had seizures, no epilepsy in the family. Has anyone else had this problem?

Comments

To start with the EEG is a

Submitted by just_joe on Wed, 2016-11-23 - 11:21

To start with the EEG is a brain wave test which shows the electrical output coming from your brain. If it is normal then the output is like your next door neighbor. However if it shows abnormalities then they know where they came from. Abnormalities are spikes or waves. Also known as epileptiform or seizure activity. A person can have a normal EEG. I know I had 20-25 different EEG's all come back normal. I was still having seizures. Then they ran a battery of tests and the last one was a longer EEG in which I fell asleep. That EGG came back with abnormalities. They looked at where it came from and then looked closer at the MRI of the 60's and the closer look found scar tissue in the left lobes of my brain. What starts a seizure is an electrical impulse hitting wrong in the brain causing a chain reaction. So those abnormalities can cause a seizure.As for never having a seizure before and it never ran in the family... Anybody at anytime can get epilepsy. Epilepsy does not discriminate. Rice, poor, old young any race so you could have itNow you posted "no professor can tell me" Are any of those professors neurologists that specialize in epilepsy??? If not then they are regular neurologists who treat anything coming from the central nervous system. Meaning they may not know all the procedures or things to look for since brain waves are looked at for ADHD,PTSD, ALHZ and many more issues people deal with. keppra till the 6 month mark with no further seizures and I demanded to come off keppra <<< Did you ever think the keppra might be what has stopped your seizures?? The EEG they ran with fewer spikes might have fewer spikes because it takes a little over a month for all the medication to come out of your body. Yes medications are created to stop the spikes or waved from hitting wrong. Each and every person has a threshold for ailment or seizures head aches pains and the list goes on.Has anyone else had this problem? <<< Yes and many people have had normal EEG's all the times but still have seizures. A lot of the people with epilepsy have normal EEG's and the neurologists can find nothing that caused their epilepsy. Understand that all it takes for those abnormalities to show up is a brain cell deformation.You can live in your grey patch and possibily be fine. But you can do that and still have a seizure. I hope this helpsJoe

To start with the EEG is a brain wave test which shows the electrical output coming from your brain. If it is normal then the output is like your next door neighbor. However if it shows abnormalities then they know where they came from. Abnormalities are spikes or waves. Also known as epileptiform or seizure activity. A person can have a normal EEG. I know I had 20-25 different EEG's all come back normal. I was still having seizures. Then they ran a battery of tests and the last one was a longer EEG in which I fell asleep. That  EGG came back with abnormalities. They looked at where it came from and then looked closer at the MRI of the 60's and the closer look found scar tissue in the left lobes of my brain. What starts a seizure is an electrical impulse hitting wrong in the brain causing a chain reaction. So those abnormalities can cause a seizure.As for never having a seizure before and it never ran in the family... Anybody at anytime can get epilepsy. Epilepsy does not discriminate. Rice, poor, old young any race so you could have itNow you posted "no professor can tell me" Are any of those professors neurologists that specialize in epilepsy??? If not then they are regular neurologists who treat anything coming from the central nervous system. Meaning they may not know all the procedures or things to look for since brain waves are looked at for ADHD,PTSD, ALHZ and many more issues people deal with. keppra till the 6 month mark with no further seizures and I demanded to come off keppra  <<< Did you ever think the keppra might be what has stopped your seizures?? The EEG they ran with fewer spikes might have fewer spikes because it takes a little over a month for all the medication to come out of your body. Yes medications are created to stop the spikes or waved from hitting wrong. Each and every person has a threshold for ailment or seizures head aches pains and the list goes on.Has anyone else had this problem?  <<< Yes and many people have had normal EEG's all the times but still have seizures. A lot of the people with epilepsy have normal EEG's and the neurologists can find nothing that caused their epilepsy. Understand that all it takes for those abnormalities to show up is a brain cell deformation.You can live in your grey patch and possibily be fine. But you can do that and still have a seizure. I hope this helpsJoe

To start with the EEG is a brain wave test which shows the electrical output coming from your brain. If it is normal then the output is like your next door neighbor. However if it shows abnormalities then they know where they came from. Abnormalities are spikes or waves. Also known as epileptiform or seizure activity. A person can have a normal EEG. I know I had 20-25 different EEG's all come back normal. I was still having seizures. Then they ran a battery of tests and the last one was a longer EEG in which I fell asleep. That EGG came back with abnormalities. They looked at where it came from and then looked closer at the MRI of the 60's and the closer look found scar tissue in the left lobes of my brain. What starts a seizure is an electrical impulse hitting wrong in the brain causing a chain reaction. So those abnormalities can cause a seizure.As for never having a seizure before and it never ran in the family... Anybody at anytime can get epilepsy. Epilepsy does not discriminate. Rice, poor, old young any race so you could have itNow you posted "no professor can tell me" Are any of those professors neurologists that specialize in epilepsy??? If not then they are regular neurologists who treat anything coming from the central nervous system. Meaning they may not know all the procedures or things to look for since brain waves are looked at for ADHD,PTSD, ALHZ and many more issues people deal with. keppra till the 6 month mark with no further seizures and I demanded to come off keppra <<< Did you ever think the keppra might be what has stopped your seizures?? The EEG they ran with fewer spikes might have fewer spikes because it takes a little over a month for all the medication to come out of your body. Yes medications are created to stop the spikes or waved from hitting wrong. Each and every person has a threshold for ailment or seizures head aches pains and the list goes on.Has anyone else had this problem? <<< Yes and many people have had normal EEG's all the times but still have seizures. A lot of the people with epilepsy have normal EEG's and the neurologists can find nothing that caused their epilepsy. Understand that all it takes for those abnormalities to show up is a brain cell deformation.You can live in your grey patch and possibily be fine. But you can do that and still have a seizure. I hope this helpsJoe

First time seizure

Comments

To start with the EEG is a

Submitted by just_joe on Wed, 2016-11-23 - 11:21

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