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Epilepsy and Me

Mon, 06/22/2009 - 07:12
My first seizure occurred, I was sixteen years old, They said it could be Epilepsy, i felt so very cold. Seizures came fast and not far between, So ashamed, never wanted to be seen, Very hard to hide because i'd often fall down, Always making me feel a bit of a clown. Not quite understanding exactly what i had, Was it an illness or had i gone mad, These were the questions to which i wanted a reply, Sometimes sit alone and ask myself why. What have i done to deserve this, why should it be me, I want to normal, I want to be free, I've got to hide it, I dont want anyone to know, It's so very, very hard, the road is so narrow. Seizures coming more often, the illness getting worse, I still can't accept this, it's definitely a curse, More and more people are seeing my fits, So i decide it's time not to keep it secret. I've accepted my illness now, it's one thing I dont hide, Even after a seizure I'll hold my head up with pride, No longer ashamed and no longer afraid, Now if I do have a seizure my friends offer aid. Consultant told me that one day i could beat it, Fantastic news i was so happy to greet it, The chance of the operation is too much of a gamble, It's when your told something like this life feels a shamble. Since going to hospital, i felt i wasn't alone I used to sit at home, think i was all on my own, I should've had more information, maybe be told, In the early years not left out in the cold. It was so very hard to accept it, so hard to understand, But epilepsy was never discussed with me beforehand, My confidence after a seizure is still slightly affected, But no longer afterwards do i feel so rejected. When people talk about epilepsy, i certainly feel warmer, There's no shame, no worry and won't be a trauma.

Comments

Re: Epilepsy and Me

Submitted by david 59 on Mon, 2009-06-22 - 08:59
david59   hi gherkin! glad to hear from you. what a statement! what an attitude! i simply cannot imagine the emotions you been thru past two years i known ya. i sure hope yer family is doin good. ....sorry, my brain is stuck, cant say more. peace to you... david

Re: Epilepsy and Me

Submitted by Mimi3 on Mon, 2009-06-22 - 10:33

Hi gherkin,

Yeah!  Don't let it win.  I thought the same thoughts, but then I started thinking, "Why not me?" and everything turned around.

Nope, you're not alone.  When I stopped hiding I saw how people came to stand beside me.  It got to a point where I could laugh and talk about falling down, looking funny, etc.  

But I just had surgery in January - this is after 17 years of having seizures.  I did not want to have the surgery when I was first diagnosed.   

Hi gherkin,

Yeah!  Don't let it win.  I thought the same thoughts, but then I started thinking, "Why not me?" and everything turned around.

Nope, you're not alone.  When I stopped hiding I saw how people came to stand beside me.  It got to a point where I could laugh and talk about falling down, looking funny, etc.  

But I just had surgery in January - this is after 17 years of having seizures.  I did not want to have the surgery when I was first diagnosed.   

Re: Epilepsy and Me

Submitted by omega3 on Mon, 2009-06-22 - 11:47

Hi Gherkin,

If I did not know better, I would swear that you just typed us a poem. And it is beautiful. God Bless you. You have taken the right steps to become a true advocate for the entire epileptic community. We are normal people just like the rest of the world and should be treated as such. It is true that there is strength in numbers. God Bless us all.

 

Hi Gherkin,

If I did not know better, I would swear that you just typed us a poem. And it is beautiful. God Bless you. You have taken the right steps to become a true advocate for the entire epileptic community. We are normal people just like the rest of the world and should be treated as such. It is true that there is strength in numbers. God Bless us all.

 

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