Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Blue Green Algae and Cod Liver Oil with D

Tue, 05/13/2008 - 09:33

Hi all

I have just found this site about a month ago and enjoy reading everyones comments, especially on the Fish Oils and how they are helping.  My daughter is 14, has had E since 4 yrs old.  Started with Petit Mals and for the last year or so, has also started having Myoclonics.  Started on Zarontin, which did not help, then on Depakote which she was on since 4 till a year ago.  With the Myoclonics starting too (EEG showed Absence still there), was switched to Zonegram, which has helped greatly for both seizure types.  Still has a myoclonic now and then.   She has severe learning issues.  Don't know if it is seizure related, medication related, or if she would still have these academic issues even if she didn't have E.  She is in 7th grade but on a 3rd grade level.  Has problems with concepts.  Doesn't understand Time or Money.  Handwriting still on a 2nd grade level.  Socially she is on level, so it is difficult for her to deal with life, as academically she is so far behind, but socially, and verbally she is OK.  She will make friends, but when they find out she is in Special Ed, they kind of drop her.  Her confidence level is down in the dumps.  We recently found a tutor for her (about her 3rd one) who has recommended alot of homeopathic ideas.  She herself had alot of physical issues that homepaths have worked on her for.  She takes and is recommending Cod Liver Oil but with Vitamin D in it.  Also the mgs. of the oil and D is much higher than the USRDA.  She highy recommended a specific brand.  It is a company called Nordic Naturals.  Anyone heard of them?  Also, she takes and is highly recommeding a product that is made from Blue Green Algae from a company called Simplexity Health.  AGain, anyone heard of them?  She said the Algae is a "Food" and is great for the brain.  I have read alot of articles about it and it sounds good, but then I found some other articles that were negative.  I am looking to see if anyone out there has tried a Blue Green Algae product and the results you have had.  I did order them and had just started my daughter on them, but am wondering if anyone else has a good testimoney about them.  They are rather expensive.  The one thing I like about this tutor is, although she sells these thru this company, she is truly concerned about the welfare of these kids and sells them to me at wholesale price.  She is not interested in making a 'business' out of it, as she has said, but wants to help kids.  She only tutors special needs kids and has been trained in several different types of special needs reading and math programs, like the Orton Gillingham method etc.  So this is really a two fold tag.  Looking for info. on the Blue Green Algae product and looking for anyone else who's children have severe learning issues with the E.  Hoping to get some responses.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.