Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Parents Of Children With Epilepsy - General discussion

eye rolling

12/2013 | 0 Comments

My 15 month old started rolling his eyes back in September. They would go up behind his head. These episodes would last for a couple of seconds, but...
Child newly diagnosed - need help!

01/2013 | 5 Comments

My 15-year-old stepson was diagnosed with epilepsy yesterday. The neurologist met with him for no more than 10 mins, asked about the seizure (which we...
New to this - WHAT DO WE DO?!?

11/2012 | 2 Comments

My daughter has had FOUR(4) grand mall seizures in the past 4 weeks after never having any before this. Up until this point it had only been noticed...
My 20 month old with epilepsy.

09/2012 | 0 Comments

Hello! My name is Tiffany and my son Joseph has epilepsy. We found out that he was having seizures for sure on Monday. He is 20 months old. The doctor...
3 Year Old's evolving Seizures

07/2012 | 1 Comments

Hello, This is my first port, but have been reading stories for some time now. A little background First. My 3 year old son began having seizures at 4...
MEG Scan and 3yr old

07/2012 | 1 Comments

Has anyone had a YOUNG child have a MEG scan? I read that they are unsedated and have to stay perfectly still. It says the scan takes two hours!? I...
5 month old having seizures- on Keppra

07/2012 | 5 Comments

Our daughter began having seizures about one month ago, and has never gone more than 8 days without having one since. Ped-neuro tried phenobarbitol...
still no answers

02/2012 | 2 Comments

So my son was finally diagnosed with epilepsy at the age of 3 this last year. I have known something was wrong since he was 1 year old but nobody...
New, Help with results from son

02/2012 | 0 Comments

Hi there. New to the website and group. Mitochondrial disease runs in the family. I have it, and my daughter has an FOD (she could have MITO but we...
New, Help with results from son

02/2012 | 0 Comments

Hi there. New to the website and group. Mitochondrial disease runs in the family. I have it, and my daughter has an FOD (she could have MITO but we...
New to it all.

01/2012 | 0 Comments

Hello! I just joined the forum and group as I needed support. My son (3.5) had his second seizure yesterday (the first was in Nov.) and he is now on...
Lamictal Rash

08/2011 | 0 Comments

We just increased my sons Lamictal since the seizures are increasing in frequency. At the same time I had rubbed Aloe on his arms for a slight burn...
New to the group

06/2011 | 0 Comments

Hello everyone, I am new to this group and joined it in search of advice, info., and even just support as we are embarking on a new and unfamiliar...
new to this group

06/2011 | 2 Comments

I am new to this group. Let me start by introducing myself and my reason for joining. My name is Sarah, I am the mother to a wonderful 13 year old son...
Absance Seizures and Lamictal

04/2011 | 1 Comments

Dear All, My daughter (5 year old) was diagnosed with absance seizures last year. Our doctor put her on Ethosuximide (250mg twice a day). Her seizures...
raspy voice after seizure?

11/2010 | 1 Comments

My little boy had a seizure on Sat. not sure what kind though. after it he had a raspy voice that has lasted for two days. it is getting better now...

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