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clueless when im going have a seizure

Sat, 01/05/2008 - 12:43
I was talking to this lady online whos turns out to be a nurse and I was telling here that i have epilepsy and  I cant tell when im going have a seizure and she told me im the first person she ever knew that cant tell when he or she going have a seizure so I was wondering is it normal for a person not to know when he or she going have a seizure

Comments

clueless

Submitted by Cee on Wed, 2008-01-09 - 18:18

I've had 7 seizures to date in the past 10 yrs as a diagnosed epileptic....n I've never known before I had a seizure....I've always wished I had an aura so that I could at least get myself to someplace safe!!!!!!!!!!

I've had 7 seizures to date in the past 10 yrs as a diagnosed epileptic....n I've never known before I had a seizure....I've always wished I had an aura so that I could at least get myself to someplace safe!!!!!!!!!!

If I only new ahead of time, I'm going to have a seziure!!!!

Submitted by Ghebre on Wed, 2008-01-09 - 21:52

www.youtube.com/MySeizures

Dear Chew, The person who have told you that she can predict seizures is the most uninformed person I've yet to hear. If patients can tell they are going to have seizures, they would have saved their lives in million ways than one. For the last 10 years , I've had more than a thousand petite and Grad mal seizures and I've come to know many patients of Epilepsy. I never can tell when my seizures will strike nor did I've seen or heard anyone claim  to predict their seizures. In fact, many died because they can NOT predict their seizures and avoid the potential danger that could end their lives. Please, stop adding misinformation to the already confusing, disorienting, disabling and debilitating Neurological disorder.
Thank You,
Gerrie

www.youtube.com/MySeizures

Dear Chew, The person who have told you that she can predict seizures is the most uninformed person I've yet to hear. If patients can tell they are going to have seizures, they would have saved their lives in million ways than one. For the last 10 years , I've had more than a thousand petite and Grad mal seizures and I've come to know many patients of Epilepsy. I never can tell when my seizures will strike nor did I've seen or heard anyone claim  to predict their seizures. In fact, many died because they can NOT predict their seizures and avoid the potential danger that could end their lives. Please, stop adding misinformation to the already confusing, disorienting, disabling and debilitating Neurological disorder.
Thank You,
Gerrie

well i didnt mean any harm I

Submitted by chew on Fri, 2008-01-11 - 02:26
well i didnt mean any harm I was only asking because i didnt know and I was just wondering if anyone else can tell when he or she can have a seizure.by the way theres this  lady I work with  who has epilepsy too and she told me she knows when she going to have a seizure and she knows not to drive that day and thats another reason  I asked the question. 

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