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sounds trigger seizures?

Thu, 02/05/2004 - 18:14
I havent been diagnosed with epilepsy or with having siezures, even though I have been having what I call siezures for the last 6 years. I am going for an MRI next month, for the first time. I have had an eeg done 2 years ago and it came back normal. My question is...Can a sound or maybe even a certain song trigger on a siezure? I ask this because it seems like a sound or even the sound of a word makes me feel like I am going to have a siezure. I feel like a anxiety feeling inside me happens before I accually go into the siezure, when the siezure happens I am awake but unaware of what is going on around me, everything freezes and sounds become muffled and I cant understand what I hear. Another thing my husband has told me is when I feel like I am going to have the siezure and I try to warn him, I dont make any sence in what I am saying and sometimes it somes out like I am shouting. I dont know that I am not making any sence or even that I am shouting it, to me I have said " Im having a siezure" clearly. He also said my eyes get huge and my pupils dialate, also I turn white as a ghost. I think my siezures last for a few seconds, but he has timed them and sometimes they last as long as 5 minutes. After the siezure I dont remember anything prior to the siezure or anything during the siezure, all I know is that I had one. I also feel sick to my stomach and sometimes throw up afterwards, I get a extreme hot flash sometimes, but mostly I am worn out and extremely tired for about and hour or two after the siezure. A co-worker said that her brother has twilight siezures and what I described sounds identical to his siezures, he also said a certain song has brought on his siezure, which is what I have experienced twice now. I dont remember the song or even the words to the song, by the time I come out of the siezure the song has long been over. I have a siezure about 2-3 times a month. Does anyone have any simular triggers as I do? Does it sound like what I have is accually a siezure? Or am I just going crazy? I have been told maybe it is a panic attack, but I dont know why I would be having those because I am a laid back person with no or very little stress in my life. I have also awaken to a siezure, I dont think a panic attack happens in your sleep. Thanks for any input.

Comments

RE: sounds trigger seizures?

Submitted by p-nut on Tue, 2005-05-24 - 08:50

My cps always happen in the morning during or after my shower and almost always when the NPR Morning Edition music is going.  So I'm not sure which of these things is the trigger, but I do now associate the seizures with that music!

 

Paige

My cps always happen in the morning during or after my shower and almost always when the NPR Morning Edition music is going.  So I'm not sure which of these things is the trigger, but I do now associate the seizures with that music!

 

Paige

RE: sounds trigger seizures?

Submitted by Yakota on Tue, 2005-05-31 - 12:01
Hi y'all. I find that when I go into the aura phase of seizure that I am partiuarly sensitive to sounds.Strange. Some times during seizure sounds become magnified and at other times I can hear but then everything becomes muffled. I find that if I remove myself to someplace quiet away from sound, music, clutter of people, etc., then I have an easier time wth the seizure. I may decide to burn up some time researching "triggers" for seizure, outside of those I already know. I am aware of certain triggers, stimulants found in foods, sleep deprivation, lack of sodium, blarring and sudden noises, too much excitment, too much "B' vitamins, and so on. I will have to keep my ears open as to what sounds really seem to set off seizure in me. I have never paided much attention to that aspect of E before. I have examined just about all the other aspects of what causes and what eliminates seizure. Odd. people don't have a clue as to what we with E go through on a daily basis? LOL. I say that those of us with E have a special insight to life that others will never known. Interesting to read what everyone has written here in regards to sound and seizure. Blessings. Linda.

RE: sounds trigger seizures?

Submitted by SteviesMom on Wed, 2005-06-01 - 09:52
Sounds can definately cause seizures.  My daughter can hear a loud noise like a car horn or some body just calling her too loud and down she goes.  We were at lowes one night and one of the guys dropped something and down she went.  My husband yelled at the guy and i felt sorry for him cause he didnt mean to do anything wrong lol.  Most people just dont understand it and i never would have either if it had never happened to us.  We try to keep her out of the front yard in case somebody rides by and beeps at her...the things we take for granted huh?

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