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So afraid I'm making this up : (

Sun, 10/13/2013 - 23:16

Soooo I've been through just about everything and feeling hopeless. Comlex PTSD, undiagnosed seizures, etc. Recently what I thought were just strange anxiety attacks got worse and the ER doc tossed out the word "seizure". Since that morning everything has turned upsidedown and I'm feeling very alone with this waiting for my neurologist appt.

What happens is all of a sudden I'll feel like I'm being electrocuted. My thoughts will become uncontrollable and I'll feel like I'm dreaming. After some time the dream starts to fade and I never remember the event other than the start and the end. On Friday I had huge blackout moments after a bigger event. All of a sudden I was dressed and in my room and all I could remember was reaching for a towel, then nothing. I had a pounding headache as well. It took almost two hours for my vision to return to normal(right eye wouldn't focus) and my left side of my body to stop tingling in addition to the headache going away. Since then I've had what feels like auras. I'll feel really distant and tingly, in addition to starting to get a headache. Usually my left arm and leg will go numb as well. I'll catch myself staring and having difficulty reading and typing sentences. Sometimes a more minor event will happen with this (the feeling like I'm being electrocuted), then I'll getting a pounding headache for approximately a half hour in addition to feeling extremely exhausted. If I can, I'll fall asleep. All of a sudden it will all fade away then return again a few hours later. It even happens at night.

I'm so afraid I'm making this up and that the neurologist will just say there's nothing wrong. I'm trying my best to just ignore it and act like normal but it's hard. I'm just afraid and feeling very alone. These were really bad last year at this time (upwards of 6 a day) but got better so I only had a few a month.

 

Abby

Comments

Re: So afraid I'm making this up : (

Submitted by Masterjen on Wed, 2013-10-23 - 10:04
I haven't replied but have kept track of the posts.  Good luck on Friday, and I hope you will continue to update everyone here.

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